RE: Re: Barbara / HE

[Guest guest]

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Barbara (Wife of , PSC'07, HE, Chronic Pancr, Osteo,

Diabetes, Listed)

_

Barbara, how are YOU

doing - dealing & coping with ’s bouts of HE?

Barb in Texas - Together in the Fight - Whatever it

Takes!

Son Ken (34) UC 91 PSC 99, LTX 6/21 &

6/30 2007 @ Baylor/Dallas

[Guest guest]

Barb,

The HE has been quite a bit better lately. One of his BIG issues is that his

diabetes was WAY out of control (731) and he was hospitalized in January for

that. It must have been a big wake up call for him because he has had a major

turnaround on that. His blood sugars are much better and that has helped his

whole condition, especially his HE. I believe that a big part of is because the

high blood sugars were a major part of him not remembering to take his Lactulose

- it became a cycle. Now that his diabetes is so much better he keeps a chart

of when he takes his meds (Lactulose is a category of its own), food, insulin,

etc. and he is right on top of it. The problem with his HE have been better,

but not gone; it is manageable now.

You asked about how I am doing dealing with the HE. As you know personally and

with the long explanation above means that I am coping with it much better lol.

Like everyone else, we still have issues that we are dealing with and right now

we're fighting another issue with water retention - not ascites - and he is on

the maximum meds to deal with it and, of course, his meld score is up 1 point to

10. We are doing lots of tests but is is still the same old story, he is much

sicker than his lab work indicates.

I know, this is more than you asked, it all just seems to spill out.

Thank you so much for thinking about us.

LOVE & LIGHT

Barbara (Wife of , PSC'07, HE, Chronic Pancr, Osteo, Diabetes, Listed)

> Barbara, how are YOU doing - dealing & coping with

> 's bouts of HE?

>