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Re: Digest Number 2440

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In a message dated 4/7/03 9:28:23 PM US Mountain Standard Time,

chiari writes:

> Can someone help me ?

>

My son, , had the decompression surgery when he was 4 1/2 years old

and he is doing very well now, thank God. I mostly lurk here, so you are

more likely to get hold of me at my private e-mail address:

sarriaki@...

Sharie

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In a message dated 4/7/03 9:28:23 PM US Mountain Standard Time,

chiari writes:

> basically she said Ohhhhh having a Chiari is no big deal..

,

My son's neurologist basically said the same thing to me and called me an

hysterical mom and to take home and watch for seizures. Fortunately,

I had a good friend who got us in to see Dr. Harold Rekate here at Barrows

Neurological in Phoenix, AZ, who disagreed with the neurologist.

had the surgery and is doing very well now. I would recommend seeing a

neurosurgeon.

Sharie

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In a message dated 4/7/03 9:28:23 PM US Mountain Standard Time,

chiari writes:

> basically she said Ohhhhh having a Chiari is no big deal..

,

My son's neurologist basically said the same thing to me and called me an

hysterical mom and to take home and watch for seizures. Fortunately,

I had a good friend who got us in to see Dr. Harold Rekate here at Barrows

Neurological in Phoenix, AZ, who disagreed with the neurologist.

had the surgery and is doing very well now. I would recommend seeing a

neurosurgeon.

Sharie

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In a message dated 4/7/03 9:28:23 PM US Mountain Standard Time,

chiari writes:

> basically she said Ohhhhh having a Chiari is no big deal..

,

My son's neurologist basically said the same thing to me and called me an

hysterical mom and to take home and watch for seizures. Fortunately,

I had a good friend who got us in to see Dr. Harold Rekate here at Barrows

Neurological in Phoenix, AZ, who disagreed with the neurologist.

had the surgery and is doing very well now. I would recommend seeing a

neurosurgeon.

Sharie

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In a message dated 4/7/03 9:28:23 PM US Mountain Standard Time,

chiari writes:

> Dahli DAwn signing off for ra new jounrrey

>

>

Dear Dawn, my prayers are with you. Thank you for being there for me when I

first found out about 's chiari. You had a lot to do with me trusting

in myself to know what my child needed and to go ahead with the surgery, even

when my family was against it. Please keep in touch when you are able. I

love you, my friend!

Sharie

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In a message dated 4/7/03 9:28:23 PM US Mountain Standard Time,

chiari writes:

> Dahli DAwn signing off for ra new jounrrey

>

>

Dear Dawn, my prayers are with you. Thank you for being there for me when I

first found out about 's chiari. You had a lot to do with me trusting

in myself to know what my child needed and to go ahead with the surgery, even

when my family was against it. Please keep in touch when you are able. I

love you, my friend!

Sharie

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  • 1 year later...

> Other researchers have found that they were unable to raise the

> metabolic rate of healthy people until the thyroid doses got up to 3

> to 5 grains or 220 to 370 mcg.

>

>

>

>

TISH, in reference to this statement, are they talking about people with a

healthy thyroid that works well, or are they talking about people who

are/were hypothyroid, but are otherwise generally healthy. I'm having

trouble figuring this out, as people with healthy thyroids seem like they

would follow that particular pattern, but would people who have only SOME

thyroid function and doing replacement also hold that pattern, i.e.,

overcoming the pituitary watchdog thing. This is where I'm having the most

trouble believing this scenario. I understand that a working pituitary

would be sensitive enough to cut production of the thyroid itself, but what

if the pituitary was irradic in behavior also? We'd still be replacing ALL

that the thyroid would ordinarily make, in order to achieve a proper

metabolic rate, on an individual basis? I'm still having trouble believing

that some people don't feel good on a one to two grain Armour dose, as I do

know of some people who DO feel good for a very long time on that dosage.

Why would that be, if Derry's and the original people who frontiered

all this, are correct? In the original patients, who were first researched

on this, way back when, could it be that those patients, individually did

well on total replacement, but that others don't? I've known too many

people who are on much smaller doses, say 90 to 120 mgs, who've been on this

regimen for many yrs, and do feel very well. They'll tell you so. I'm just

wondering if those original research cases were all thyroid resistant,

rather than low thyroid only.

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