NEWBE

[Guest guest]

Welcome . Glad you found us. I am

sorry it took me so long to read your post, I am trying to catch up and can’t

get on the computer much. My name is Cheryl. I have lupus, fibro, TMJ,

degenerative disk disease, cognitive dysfunction, osteoarthritis, osteoporosis,

interstitial cystitis and I don’t know what. I have terrible tingling,

pin pricks, numbness, and pain in my legs and feet. They don’t jerk

around they just hurt like H E double toothpicks.

Yesterday at Sunday meeting I was so

sleepy I fell asleep sitting in the chair with my head hanging down for all to

see (I was in the front LOL). When I woke up I started shaking uncontrollably.

I got scared I was going to faint or something and left right away. I didn’t

feel cold, just strange and my feet and legs hurt so bad. To top it off,

because I was slumped over I hurt my back and limped around and could hardly

walk the rest of the day. It feels better today but hurts some. Weird huh? Oh

well.

From:

mates*mate

Sent: Sunday, July 25, 2004 12:50

PM

To: LUPIES

Subject: NEW

hi,

my name is linda

and i'm new here. i'm 55 and live in wisconsin.

i've never had

anything like this before, well not that lasted more than just one or

two twinges. this is every day, throughout the day. i figured it

was some kind of neuralgia, or my jaw (tmj). so when he's examining me,

he asks out of the blue, if anyone in my family has ever had MS. at

this point in time. once, this same doctor has also tested me for lupus

and the ana test came back positive. i also have restless leg syndrome

BAD, along with all the normal fibromyalgia symptoms. some of the

symptoms i had years ago that sent me to the doctor, when i was told about

the ms probability were: jerky eye movements, weakness, jerking

muscles, electric type feelings in my body, loss of coordination, shaking,

incontinence, and being very sensitive to the heat figured it was all the

FMS. now i'm wondering again. has anything i've said here rung a

bell with any of you -- have any of you had similar experiences, symptoms,

etc. thanks a lot and thanks for having me here.

linda

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