Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Have any of you been tested for this ? I was just looking at my latest immune tests and I was tested for it and it was negative- the notes on my labs says- The atypical pANCA pattern has been observed in a significant percentage of patients with UC, PSC and autoimmune hepatitis. I know Braden hasn't been tested for this just the P ANCA and one dr was convinced he didn't have PSC because the test was negative- but it sounds like he ordered the wrong test ? I don't think you have to have a positive test for P ANCA to be diagnosed with PSC-it's just an indicator ?? That one doctor still keeps looking for indicators that Braden might not have PSC- even though he was the first to suggest he had it ?!? I don't know why he is looking for signs that he doesn't have PSC now.....but Braden seems to be stable with vancomycin and monthly IVIG infusions but i think it would be a HUGE mistake to try and dismiss all the evidence and now say- he doesn't have PSC KWIM ? Braden has small duct PSC (early in the dx process) and increased EOS per biopsy , intrahepatic beading, repeated strictures after many dilations and stents for 3 years, thickening of intrahepatic duct walls, persistantly thickened common bile duct walls , classic LFT elevations that stabilized somewhat with urso, and classic PSC indicators on all of his MRCPs and ERCPs. Lori lucky mom blessed with triplets Quote Link to comment Share on other sites More sharing options...
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