Questions and answers about myself

July 2, 2002

Age range: 50-60

male/female: female

What are the symptoms: All over pain, 24-7,muscle

weakness, fatigue, restless legs syndrome.

Has your illness been diagnosed? Yes

Is there a time that you can remember when it

started?As I looked back, after the birth of my second

child.

Some of us have found lack of exercise we are

overweight. Have you found this to be a problem also?

Yes. I tend to put exercise in my daily plans at the

bottom of my list. And concentrate on my

housecleaning, taking care of the kids, cooking,

etc.Then I'm in too much pain or so tired I can barely

move. (isn't that pitiful??!!)

Are you on disability? Yes

If you are any pointers for others trying to get on

disability?? It is true that the majority of the

time, the first two attempts they will deny it. After

the second denial, get an attorney that works with

Social Security disabilities. I had waited for almost

two years for a court date.So, I finally contacted my

Senator who had a local office where I lived. His

office people worked with me and eventually it was

approved without a court hearing!!

What have you found that helps ease the pain, warm

baths, medications and etc.? I take Darvocet and

Ultram together four times a day routinely. Also,

stretching exercises so many times a day helps me at

times. If my pain is unbearable I use a TENS unit.

That really helps.

Do you have sleep problems? How do you deal with it? I

have sleep deprivation (had sleep study) I take

Trazodone and for the restless legs I take Neurontin

at bedtime.

Do you have family that understands your illness?

Sometimes. My little 7 year old can't seem to

understand why I can't play more and go places more.

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