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This is Marna with 14 year old Wesley. I am at s Hopkins. I just found out

that an MRCP was read wrong in April 2006. ( It said Normal....which I told the

gastro that did not sound write and he blew it off ,,,did a punch biopsy that

showed 3rd stage with beading ) No jaundice, no itching, Hemoglobin 12.6.

Sept 24, 2008 Wesley was looking gaunt and had a hemoglobin of 10.2 and low

white count. and low RBC

Now 2/27/09 he looks really bad ( gaunt )...quit growing,,,has a 8.6 hemoglobin

and 3.7 white count,,,

the MRCP in 2006 read moderately enlarged spleen with what looked like enlarged

lymph nodes.

MY QUESTION IS SHOULDN'T THEY BE DOING SOMETHING TO LOOK AT HIS SPLEEN AGAIN ?

ALL THEY HAVE HIM SCHEDULED FOR ARE COLONOSCOPY, ENDOSCOPY, AND LIVER BIOPSY.

DON'T THEY NEED A SCAN , ULTRASOUND , MRI OR SOMETHING FIRST ?

I AM A NURSE AND TO ME THEY ARE NOT DOING RIGHT,,,THE DOCTOR HAD A BAD ATTITUDE

BECAUSE I CAME FROM OUT OF STATE. SHE BASICALLY SAID GO BACK TO TEXAS !

MARNA

MY SISTER IS AN ER NURSE AND SAID HE SHOULD HAVE POSSIBLY BEEN ADMITTED AND THAT

I SHOULD JUST WALK IN THE ER FOR A SECOND OPINION ?

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