Guest guest Posted March 16, 2005 Report Share Posted March 16, 2005 on 3/16/05 7:22 AM, LaCretia Mozingo at lacretiamo@... wrote: > I hate to hear that Inga. It hard when you are on your own. The 's > group isn't going to help you if they find out you are self treating. They > highly recommend against that and will say so. In my case, I took Cortef > 10mg...once when I wake up and then again around 2PM. 2Pm is when I would > begin to crash. After the doctor added the second dose at 2, I was fine. I > am also taking pregnenlone once in the morning and it does help also. I was takng pregnenlone ($$$) It did not seem to do anything for me, so I sort of slacked off a bit. Is it more important to take if you are concurrently taking cCORTISONE? > don't remember what you were taking...can you remind me? >I have never had > the heart pounding in the middle of the night. Thas could jsut as well be a toxic thing...mercury thing...allergy th8ing....etc... Although I must admit that whenI take CORTISONE, my heart doesn't pound like crazy anymore when I am awakened for the phone ringing. >I have really tough time > staying awake so, once I'm out...I'm out! Since I have been reducing the > Cortef (today is my last dose...yippie), I have not been able to stay awake > past 8-8:30pm at night. I do hope this gets better after I get off the > meds. I'lll bet you it will. > I'm almost due to go back into the Dr. for a blood draw to see how > things are going...I think next week. After I'm off the Cortef for a while, > I plan to get officially tested for adrenal problems. My doc only went by > my Cortisol test and did not perform the extra testing to confirm how bad it > really is. She said the treatment is the same either way...guess she was > trying to spare me from having to take extra tests when the outcome is the > same... steroid replacement. I still want the test knowing what I know now > and I will be asking her when we can perform them at my visit next week! > Take are... Goo luck, Inga > > LaCretia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2005 Report Share Posted March 16, 2005 Yes, but I can always hang out and just read.... :-) LaCretia, I looked and saw many groups for this. Which 's group is the one you have been referring to? Thanks, Inga PS - Today I have energy again...I am cutting the pills real tiny and really spreading them out. I was actually able to walk out to the woodpile briskly and abck this after noon! Welll,, after I picked up a piece of wood and walked back, I felt it,but not as bad as it has been... on 3/16/05 7:22 AM, LaCretia Mozingo at lacretiamo@... wrote: > I hate to hear that Inga. It hard when you are on your own. The 's > group isn't going to help you if they find out you are self treating. They > highly recommend against that and will say so. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2005 Report Share Posted March 16, 2005 Yes, but I can always hang out and just read.... :-) LaCretia, I looked and saw many groups for this. Which 's group is the one you have been referring to? Thanks, Inga PS - Today I have energy again...I am cutting the pills real tiny and really spreading them out. I was actually able to walk out to the woodpile briskly and abck this after noon! Welll,, after I picked up a piece of wood and walked back, I felt it,but not as bad as it has been... on 3/16/05 7:22 AM, LaCretia Mozingo at lacretiamo@... wrote: > I hate to hear that Inga. It hard when you are on your own. The 's > group isn't going to help you if they find out you are self treating. They > highly recommend against that and will say so. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2005 Report Share Posted March 16, 2005 Yes, but I can always hang out and just read.... :-) LaCretia, I looked and saw many groups for this. Which 's group is the one you have been referring to? Thanks, Inga PS - Today I have energy again...I am cutting the pills real tiny and really spreading them out. I was actually able to walk out to the woodpile briskly and abck this after noon! Welll,, after I picked up a piece of wood and walked back, I felt it,but not as bad as it has been... on 3/16/05 7:22 AM, LaCretia Mozingo at lacretiamo@... wrote: > I hate to hear that Inga. It hard when you are on your own. The 's > group isn't going to help you if they find out you are self treating. They > highly recommend against that and will say so. Quote Link to comment Share on other sites More sharing options...
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