Re: *LaCretia -taking Cortisone

[Guest guest]

I do not have any choice BUIT to self treat at this time, even thogh I hear

what ou are saying. I am pretty much on my own.

Tell me something: Did you have a hard time when you first started the

cortisone.

I mean, I am now taking it every 4 hours like clockwork, but that does not

seem frequently enough for my decrepit conditon...I start getting sick,

until I get the next pill in me.

Is this the type of thing that ahppens early on when you first start, or is

this a real warning signal?

I guess I shuold go join the 's groupl, but jumpin' jiminy, I am on

so many health related forums, that I can not keep up with them as it is.

So I am setting my alarm clock and will get up to take about 2 1/2 mg in the

middle of the night so I don't go into heart pounding again like I did last

night.

~inga

/on 3/3/05 8:46 AM, LaCretia Mozingo at lacretiamo@... wrote:

>> I

>>>> can say that I have had several close calls where my body burned the

>> little

>>>> 20mg you get so quickly that I went into a hypoglycemic episode

>> followed by

>>>> 3 days of pure exhaustion and severe symptoms. To the degree my doctor

>>>> doubled my steroid dose for 3-4 days so I could recover without going

>> to

>>>> the

>>>> hospitol. Certainly I don't want to scare anyone, but I think it's

>>>> important to share our expieriences though and my expierience

>> is...don't

>>>> self dose the adrenals...it's dangerous. Hope this helps ....

>>>>

>>>> Be well!

>>>> LaCretia

>>>>

[Guest guest]

I do not have any choice BUIT to self treat at this time, even thogh I hear

what ou are saying. I am pretty much on my own.

Tell me something: Did you have a hard time when you first started the

cortisone.

I mean, I am now taking it every 4 hours like clockwork, but that does not

seem frequently enough for my decrepit conditon...I start getting sick,

until I get the next pill in me.

Is this the type of thing that ahppens early on when you first start, or is

this a real warning signal?

I guess I shuold go join the 's groupl, but jumpin' jiminy, I am on

so many health related forums, that I can not keep up with them as it is.

So I am setting my alarm clock and will get up to take about 2 1/2 mg in the

middle of the night so I don't go into heart pounding again like I did last

night.

~inga

/on 3/3/05 8:46 AM, LaCretia Mozingo at lacretiamo@... wrote:

>> I

>>>> can say that I have had several close calls where my body burned the

>> little

>>>> 20mg you get so quickly that I went into a hypoglycemic episode

>> followed by

>>>> 3 days of pure exhaustion and severe symptoms. To the degree my doctor

>>>> doubled my steroid dose for 3-4 days so I could recover without going

>> to

>>>> the

>>>> hospitol. Certainly I don't want to scare anyone, but I think it's

>>>> important to share our expieriences though and my expierience

>> is...don't

>>>> self dose the adrenals...it's dangerous. Hope this helps ....

>>>>

>>>> Be well!

>>>> LaCretia

>>>>

[Guest guest]

on 3/16/05 7:22 AM, LaCretia Mozingo at lacretiamo@... wrote:

> I hate to hear that Inga. It hard when you are on your own. The 's

> group isn't going to help you if they find out you are self treating. They

> highly recommend against that and will say so. In my case, I took Cortef

> 10mg...once when I wake up and then again around 2PM. 2Pm is when I would

> begin to crash. After the doctor added the second dose at 2, I was fine. I

> am also taking pregnenlone once in the morning and it does help also.

I was takng pregnenlone ($$$) It did not seem to do anything for me, so I

sort of slacked off a bit. Is it more important to take if you are

concurrently taking cCORTISONE?

> don't remember what you were taking...can you remind me?

>I have never had

> the heart pounding in the middle of the night.

Thas could jsut as well be a toxic thing...mercury thing...allergy

th8ing....etc...

Although I must admit that whenI take CORTISONE, my heart doesn't pound like

crazy anymore when I am awakened for the phone ringing.

>I have really tough time

> staying awake so, once I'm out...I'm out! Since I have been reducing the

> Cortef (today is my last dose...yippie), I have not been able to stay awake

> past 8-8:30pm at night. I do hope this gets better after I get off the

> meds.

I'lll bet you it will.

> I'm almost due to go back into the Dr. for a blood draw to see how

> things are going...I think next week. After I'm off the Cortef for a while,

> I plan to get officially tested for adrenal problems. My doc only went by

> my Cortisol test and did not perform the extra testing to confirm how bad it

> really is. She said the treatment is the same either way...guess she was

> trying to spare me from having to take extra tests when the outcome is the

> same... steroid replacement. I still want the test knowing what I know now

> and I will be asking her when we can perform them at my visit next week!

> Take are...

Goo luck,

Inga

>

> LaCretia