A message from Chris....

[Guest guest]

He wanted me to tell everyone on this wonderful site how much he appreciates the

support you all have given me during this crazy time.

He also wanted me to tell those of you who have not reached the point of

transplant yet that it is scary and continues to be scary but it is SO worth it.

And also changing your mind set from a person with PSC who is sick to a person

who no longer has PSC and is on their way to recovery takes time.

Also, if you need help, don't be afraid to ask. This goes for the patient as

well as the caregivers. And if someone offers their help, let them. My inlaws

asked me if I wanted them to do our daughter's laundry last night. I said no,

that's silly. looked at me and said " they're offering to help. Let them. "

And our amazing neighbors gave us a recliner tonight. I went to their house to

give them a card to thank them for taking care of our cats while was in

the hospital. I sat down on their recliner and told them that I wished we'd

gotten one because it's hard for to get up and down off of the couch by

himself. They said we could have one of theirs! They're moving and were going to

get rid of it anyway. So they hoisted it up onto a cart and brought it across

the street. They are amazing people and we will miss them terribly when they're

gone.

One more thing he wanted me to tell you is that once you have a transplant,

there is so much that you go through (being in ICU for example) that emotionally

he's not ready to revisit yet. Even though it's a good thing, a life saving

thing, it is still VERY traumatic for the patient especially and for the family

as well.

Lastly, when you ask for prayers for yourself or your loved one, remember the

donor families. They have to lose a loved one so that the rest of us don't have

to. And also for those who are sick and waiting. We were extremely fortunate to

be at a center that has a very short waiting list. Not every one is so lucky. He

also said, make sure you get yourself right with God before. We've both

struggled in this area before and this experience has really opened our eyes and

our hearts.

He also wanted me to let you all know that when he is feeling better and more

like himself, he would be more than happy to share his story or talk to anyone

who might be going through the process. He's just not ready yet. But in time he

will be. Thank you all for your love and support! We wish you long life and

healthy days!

Bobbi & Chris