Newly diagnosed with questions

[Guest guest]

Hi everyone,

My husband was diagnosed with PSC on Wednesday. I have been reading a

lot on the Internet, but it's mostly just made me confused. They are

scheduling my husband for an MRCP, and they said his something-19

scores were fine--I guess that means no bile duct cancer? There are a

lot of posts here, and I don't know where to begin. Is there a

particular thread that would be good for a newbie to read? The doctor

told my husband no drinking and he also started him on Ursodiol. What

else do we need to do here at the beginning of our diagnosis? We

asked about a liver transplant and our doc didn't seem to want to

focus on that. I'd hate to think of my husband suffering or even

dying from this--is that a possibility? Thanks for any advice or

reassurance.

Alison