Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 Awesome news! Thanks for sharing. We all need to hear the good news! From: [mailto: ] On Behalf Of shawnee618 Sent: Wednesday, February 18, 2009 6:00 PM To: Subject: Got good news today First of all, let me say I hesitated posting good news. I know so many of us are struggling and not doing well, and I didn't want to be insensitive to that. But then my darling husband reminded me that we all need to be hopeful and hear good things, and I remembered how I often get that same hope reading about those of us doing well. So I will share. I was diagnosed in September, and then got Lyme in October and was hospitalized. This put some testing on the back burner. I finally had a liver biopsy in January, which I got results for today. I also had labs yesterday. My biopsy shows zero intrahepatic involvement! I have some very mild chronic hepatitis, but no fibrosis, hemosiderosis, granulomas or malignancy. Negative for features of PSC. My labs were- Bili total 0.3 Bili Direct 0.0 Bili Indirect 0.4 AST 25 Alk Phos 70 ALT 28 Amylase 38 Lipase 91 My doc said that with no liver involvement thus far, my chances of ever needing a transplant went down dramatically. I know it also increases my odds for CCa, but I feel that is rare and have decided to not worry about it. He said this is about as good as one can get with this disease. Considering that when I found this board, I was pretty sure I was going to face an early death, this is almost more good news than I can handle lol. ee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 Excellent! Happy news indeed! nita =================== My biopsy shows zero intrahepatic involvement! I have some very mild chronic hepatitis, but no fibrosis, hemosiderosis, granulomas or malignancy. Negative for features of PSC. My labs were- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 Excellent! Happy news indeed! nita =================== My biopsy shows zero intrahepatic involvement! I have some very mild chronic hepatitis, but no fibrosis, hemosiderosis, granulomas or malignancy. Negative for features of PSC. My labs were- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 Excellent! Happy news indeed! nita =================== My biopsy shows zero intrahepatic involvement! I have some very mild chronic hepatitis, but no fibrosis, hemosiderosis, granulomas or malignancy. Negative for features of PSC. My labs were- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 Great news! Enjoy your good health. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 Great news! Enjoy your good health. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 Wonderful! Hearing good news is a blessing. (Experiencing it's not that bad either, eh?) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 Wonderful! Hearing good news is a blessing. (Experiencing it's not that bad either, eh?) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2009 Report Share Posted February 19, 2009 ee, I say bring on the good news! We could all use it. Congrats, pal! Sandi in VA > > Subject: Got good news today > To: > Date: Thursday, February 19, 2009, 12:00 AM > First of all, let me say I hesitated posting good news. I > know so many > of us are struggling and not doing well, and I didn't > want to be > insensitive to that. But then my darling husband reminded > me that we > all need to be hopeful and hear good things, and I > remembered how I > often get that same hope reading about those of us doing > well. So I > will share. > > I was diagnosed in September, and then got Lyme in October > and was > hospitalized. This put some testing on the back burner. I > finally had > a liver biopsy in January, which I got results for today. I > also had > labs yesterday. > > My biopsy shows zero intrahepatic involvement! I have some > very mild > chronic hepatitis, but no fibrosis, hemosiderosis, > granulomas or > malignancy. Negative for features of PSC. My labs were- > Bili total 0.3 > Bili Direct 0.0 > Bili Indirect 0.4 > AST 25 > Alk Phos 70 > ALT 28 > Amylase 38 > Lipase 91 > > My doc said that with no liver involvement thus far, my > chances of > ever needing a transplant went down dramatically. I know it > also > increases my odds for CCa, but I feel that is rare and have > decided to > not worry about it. He said this is about as good as one > can get with > this disease. Considering that when I found this board, I > was pretty > sure I was going to face an early death, this is almost > more good news > than I can handle lol. > > ee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2009 Report Share Posted February 19, 2009 ee, I say bring on the good news! We could all use it. Congrats, pal! Sandi in VA > > Subject: Got good news today > To: > Date: Thursday, February 19, 2009, 12:00 AM > First of all, let me say I hesitated posting good news. I > know so many > of us are struggling and not doing well, and I didn't > want to be > insensitive to that. But then my darling husband reminded > me that we > all need to be hopeful and hear good things, and I > remembered how I > often get that same hope reading about those of us doing > well. So I > will share. > > I was diagnosed in September, and then got Lyme in October > and was > hospitalized. This put some testing on the back burner. I > finally had > a liver biopsy in January, which I got results for today. I > also had > labs yesterday. > > My biopsy shows zero intrahepatic involvement! I have some > very mild > chronic hepatitis, but no fibrosis, hemosiderosis, > granulomas or > malignancy. Negative for features of PSC. My labs were- > Bili total 0.3 > Bili Direct 0.0 > Bili Indirect 0.4 > AST 25 > Alk Phos 70 > ALT 28 > Amylase 38 > Lipase 91 > > My doc said that with no liver involvement thus far, my > chances of > ever needing a transplant went down dramatically. I know it > also > increases my odds for CCa, but I feel that is rare and have > decided to > not worry about it. He said this is about as good as one > can get with > this disease. Considering that when I found this board, I > was pretty > sure I was going to face an early death, this is almost > more good news > than I can handle lol. > > ee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2009 Report Share Posted February 19, 2009 ee, I say bring on the good news! We could all use it. Congrats, pal! Sandi in VA > > Subject: Got good news today > To: > Date: Thursday, February 19, 2009, 12:00 AM > First of all, let me say I hesitated posting good news. I > know so many > of us are struggling and not doing well, and I didn't > want to be > insensitive to that. But then my darling husband reminded > me that we > all need to be hopeful and hear good things, and I > remembered how I > often get that same hope reading about those of us doing > well. So I > will share. > > I was diagnosed in September, and then got Lyme in October > and was > hospitalized. This put some testing on the back burner. I > finally had > a liver biopsy in January, which I got results for today. I > also had > labs yesterday. > > My biopsy shows zero intrahepatic involvement! I have some > very mild > chronic hepatitis, but no fibrosis, hemosiderosis, > granulomas or > malignancy. Negative for features of PSC. My labs were- > Bili total 0.3 > Bili Direct 0.0 > Bili Indirect 0.4 > AST 25 > Alk Phos 70 > ALT 28 > Amylase 38 > Lipase 91 > > My doc said that with no liver involvement thus far, my > chances of > ever needing a transplant went down dramatically. I know it > also > increases my odds for CCa, but I feel that is rare and have > decided to > not worry about it. He said this is about as good as one > can get with > this disease. Considering that when I found this board, I > was pretty > sure I was going to face an early death, this is almost > more good news > than I can handle lol. > > ee Quote Link to comment Share on other sites More sharing options...
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