Guest guest Posted July 25, 2004 Report Share Posted July 25, 2004 HI , My name is also.....I am C. or lonewolflinda.....so we need a way to know which you are, so we won't get confused about who is who. Welcome to the group.....bunch of lovely people here, and there will someone who always has the right thing to say at the right time, also a lot of good info to be had and shared. NEW hi, my name is linda and i'm new here. i'm 55 and live in wisconsin. i have a question(s). first of all, back in the 80s and then again in the 90s, doctors (different doctors, in different areas of the country) told me, after MRIs and other testing, that there was a probability i had MS. so, i'm at my doctor's the other day, who treats me for fibromyalgia and arthritis in my lower spine and hips, depression, high blood pressure, high cholesterol, etc. the reason i went on thursday is because since july 4th, i've been having this twingy like pain, feeling in my head, on the left side, up aways above my ear, in that vicinity. i've never had anything like this before, well not that lasted more than just one or two twinges. this is every day, throughout the day. i figured it was some kind of neuralgia, or my jaw (tmj). so when he's examining me, he asks out of the blue, if anyone in my family has ever had MS. i'm so taken aback by his question that all i say is, well -- i told him about what the other 2 docs have said, but i failed to ask him WHY he asked me this, at this point in time. once, this same doctor has also tested me for lupus and the ana test came back positive. i also have restless leg syndrome BAD, along with all the normal fibromyalgia symptoms. some of the symptoms i had years ago that sent me to the doctor, when i was told about the ms probability were: jerky eye movements, weakness, jerking muscles, electric type feelings in my body, loss of coordination, shaking, incontinence, and being very sensitive to the heat -- having it make me feel worse. over the years, since, i've had some of those symptoms off and on, but haven't pursued an MS diagnosis, not since the doctor here told me i don't have lupus but did say i have fibromylagia. i have just figured it was all the FMS. now i'm wondering again. has anything i've said here rung a bell with any of you -- have any of you had similar experiences, symptoms, etc. thanks a lot and thanks for having me here. linda "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies Quote Link to comment Share on other sites More sharing options...
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