How do I help my wife - Support group?

[Guest guest]

I am not sure how to help my wife. We have been married over 31

years and she is having a problem dealing with the idea that I will

need a transplant. I truly am at a loss as to how to help her

through this. What has not helped is a longtime friend of ours lost

her husband to liver disease 6 years ago.

She has been my rock since 1996 when I was first diagnosed with UC,

then 4 days in the ICU (2003) followed by 10 days in the hospital to

find out I had PSC. Colon Removal in 2003 with J-pouch and the slow

advance of the PSC. With the progression of the PSC, especially the

lack of energy, our lifestyle has changed a lot. The results of my

November liver biopsy showed I had entered Stage 4 and have been

referred to the University of Minnesota for TRX Evaluation has been

just too much for her. Next week I have three days scheduled at the

U – the first day beginning at 6:30am and ending at 3pm. I would

like her there with me but she claims she cannot miss the classroom –

she is a special ed teacher. I believe she just cannot deal with

it. What I am looking for is a support group for her that can help

her deal with what I am putting her through. Any ideas?