RE: PSC - E

[Guest guest]

PSC

– E is

that what it is?

I too suffer from major

fatigue (I clean both Ken’s and our house).

I scratch my head (and

other body parts) all the time.

I get hot flashes (I’m 59 and should be done with this _ _ _ _ by now!)

I get severe pains in

my gluteus maximus, gluteus medius

and gluteus minius

I retain water too.

I lose my mind and can’t find it.

I hate having to clean

my ducts.

Can’t sleep either.

I have some really big swollen veins (especially in the stomach area).

My spleen MUST be

enlarged or I wouldn’t be this heavy.

I also have problems controlling

kidney function ( ever wonder why old women don’t

sneeze?)

,

is this PSC-E ??

Barb in Texas - Together in the Fight

- Whatever it Takes!

Son Ken (34) UC 91 PSC 99, LTX 6/21 & 6/30 2007

@ Baylor/Dallas

-----Original Message-----

I don't have PSC, but maybe I have PSCE

(PSC Empathy)

[Guest guest]

<>

Barb-

Upon casual observation and reading your symptoms, it's apparent you do

have PSC-E. Concurrently, you have PBC (Pretty Bad Case) of it. But it's

completely understandable. In fact, I have so much empathy specifically

for the Henshaws, I have a subset diagnosis called small tear duct

PSC-E. (Ken's Care Page posts can be emotionally moving.)

PSC-E, 03/04 (and that's the last time I'll sign off with that)

[Guest guest]

<>

Barb-

Upon casual observation and reading your symptoms, it's apparent you do

have PSC-E. Concurrently, you have PBC (Pretty Bad Case) of it. But it's

completely understandable. In fact, I have so much empathy specifically

for the Henshaws, I have a subset diagnosis called small tear duct

PSC-E. (Ken's Care Page posts can be emotionally moving.)

PSC-E, 03/04 (and that's the last time I'll sign off with that)