Help anybody that reads this

[Guest guest]

MARNA,

I experienced this to the end which includes a path report coming back after my tx that says I had PBC. I think you can imagine my reaction. I don't think so... After 12 years of ERCP's and docs telling me my ducts are beading and closing up and yes you have psc the pathologist has the audacity to put pbc on the report. I wonder if they even looked at the specimen. In addition to that they said they received a gall bladder specimen which isn't possible since it was removed in 1995 when my psc was discovered. Makes me wonder about the doctors who work in the lab. In addition to them saying I had pbc it was reported to UNOS registry that way. I have asked them to change it but we are at a stand off right now because the nurse says it has to be reported according to the path report at tx. I will continue to fight to get this

corrected. I really don't care if it messes up some of their stats. I'm sounding a bit feisty and about this issue I am.

Blessings,

Barby