Re: from a / Religious

[Guest guest]

Thank you all. I am really bummed out tonight. I am happy have

some warm fuzzies sent my way. I need them today and this weekend.

I am so thankful for those of you who are so kind who respond with

such generously kind spirits. I klnow GOd's love and handywork is

alive in this group!

God Speed -

I will take you warm pitty-fuzzies anytime!

hugs to all -

> Ok -

> I had the epidural injection last week. Started feeling like a

> spinal headach was happening (which it was...is) and I was adviced

> to go the emergency room since my pain mgm. dr was out of town and

> he does not have " back-up " . THey said call my nuerologist and he

> could help. He met me in the ER, said no doubt I needed a blood

> patch done to reliev this unbelievable pain, si he admitted me

into

> ht hospital. One whole day and night I didnt se him again. Like

> clock work 3 hrs. big pain shot. then the nurse wqould be

leave.

> At one point I asked if they could asked my Dr. about the nausea

and

> see if he could give something since I had not eaten in four days

> sincxe the headach was so bad, the meds were going in IV and

dumping

> on an empty stomach. HE NEVER called them. SO, many more hours

> clicked by. Earlier in the day before I was admitted and still in

> the ER, he ordered a caffiene drip to help the headache...IT was

> equal to 15 cups of coffee, they gave me an ativan to help with

> rapid heart beat, but...needless to say it did nothing but keep me

> awake in excrutiated pain every time I moved my head. Well day 2

> came...for 8 hrs. I saw no Dr. only nurses with the pain med

every

> three hours. Well, my Iv had by this time been burning up my arm

> and it " blew " rash and fever set in. FINALLY, the nurse was so

sad

> when she saw the pain was worse and I was nervous,, she told me

the

> Dr. had changed his mind and did not want to take responsibility

for

> doing or finding an anesthitioliogist to do the blood patch. I

> freaked. I was in big pain, I was tiered, hungry and noe so

upset,

> I started bawling like a baby. HystericaLly (ha) 40 yr. old

> woman...crying her eyes out!

> My husband got a sitter for the kids rushed up there to help. We

> got a patient advocate and they helped. BUT, I still got a 100mg

> shot of Demerol in the butt sent home and am here to suffer

because

> a spinal headache cause by spinal fliuid leak does not go away

> alone. My pain Dr. will not be back until Tuesday. Nice, huh. We

> stayed in the hospital with no Dr. overseeing me......but no one

> told me. FINALLY the nuero called me on the phone and I was

crying,

> he acted like I was having an anxiety atack (very condecending), I

> told him what I thought. He " couldn't " see what the problem was

and

> actually told me to go on home and if the pain got worse to go to

> hte ER again. I told him...I did what he said, I went to he ER,

the

> PAIN IS WORSE< and here I am...So, exactly what would the benfit

of

> me coming up to this hospital again for this problem be????so, I

> could sit alone, scared with no Dr.

> Well, we talked to the head of the hospital, we talked to the head

> of the staff, we talked to the Patient advocate, and I am feeling

> pretty lousy, but I am not done with stringing this guy from one

> line to anohter. I am NOT paying fo any of his services, we are

> talking to the Ins. company to tell them of the wasted day nd

night

> and next day with nothing to dowith my health occuring.

> If you can believe this, I have lost 50 lbs in 9 monhts with

> deligent efforts, overseen by my endocronoligist. I needed to

lose

> the weight I had gained when my thyroid stopped working. The Dr.s

> never tendwed to me, but three people from the nutritional dept.

> came by to express their concern over my weight loss...was it

> intentional or did I have an eating disorder. OH MY GOSH! Can

you

> believe it. I said yes, it was intentional, no I dont have an

> eating disorder and to leave me alone. Holy cow! Then a

dietician

> came in to my room with concerns that I had " denied " my evening

meal

> and breakfast. I lost it and told her that was because, NO ONE

HAD

> BROUGHT IT OT ME>>>oh well then they rushed in with some food.

> What a nightmare. I insisted that the Dr. discharge me

immediately

> to my husbandss care, NOT to attempt to contact me, since I had

> absolutly NO faith in his ability, and I wanted enough medication

in

> a shot to get me through a painful night at home.

> i am still hurting severly, as well as bloated from the 5 1/2 bags

> of saline (uneeded for so long) that was pumped into mesince there

> was no Dr. supetvision to cahnge or fix any of the orders.

> The staff and nurses are appalled and were very assuring that this

> was highly erroneous behavior from a physician. THey adviced us

to

> continue forward with pursing him. WHa5tever that means.

> I am still in need of a blood patch to stop the spinal leak, but I

> am petrified to do another thing.

> I am a medically educated woman due to my lupus and medical

> background...but even I was upset and terrified at the situation.

> WHat happens to those folks who don't know what is going on? The

> elderly, or those who simply trust their Dr. without question.

> oh well, I have to lie down as these headaches get worse when

> sitting up. I will check in later.

>

>

>

>

>

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