Re:Multiple ERCP's?? JoAnne

[Guest guest]

JoAnne,

My hepatologist told me not to take Advil

(ibuprofen) because of its adverse effects to the liver. There have been some

discussions about this before on this forum without a clear conclusion, but I

prefer to take paracetamol to avoid any problems.

Regards,

Chaim Boermeester, Israel

From:

[mailto: ] On Behalf Of JoAnne W

Sent: Sunday, November 23, 2008

16:04

To:

Subject: Re:

Re:Multiple ERCP's?? JoAnne

Thanks ,

It helps

to hear that I am not the only one feeling these symptoms; the doctors are

always questioning me. They have not diagnosed me with UC although I

have all the symptoms, they are saying it is acid and they think it going

down instead of up sometimes. We are starting with Prilosec for two weeks

them stop. I get Advil 200 mg over the counter for pain and if the

diarrhea gets worse I get to take Imodium. I think I need to find someone

that is more knowledgeable in PSC, but the problem is I have an HMO and my

hands are tied. So I am going to take your advise and pressed on and see if

they will elevate my case. It is hard when your lab look good and mine

do!

I am in southern California

right in-between Riverside and San Diego

near Temecula.

Thanks for your advise!

JoAnne Wisdom

PSC 2007, Riverside

CA

ear Temecula.

I have

been getting ERCP's every 6 months and this was supposed to be

my 6th in August. I made the point to the Doc that since the last two

ERCP's didn't turn up any sludge or stones could we just roll the dice

for a while? He made me wait until they received my blood results, but

let me go without it. I am having ULQ pain from time to time, but

other than that I feel fine.

Don't get in a rut and just go along with the every so often plan if

your situation doesn't require it. It will cut down the medical bills

and the ERCP is less than pleasant. So until anything changes in my

bloodwork, I am rolling the dice. Of course if I start feeling bad I

will go in. They wanted to give me ERCP #6 the next morning after #5

since we went to the ER with pain. A transplant doc was on call that

night and I was there until 1:00 AM, but we talked some reason into

them when the blood work came in.

My pain is more frequent, the writing is on the wall, but I want to

put it off as long as possible (within reason of course).

in Minnesota

PSC 2006

--

Ian Cribb P.Eng.

[Guest guest]

JoAnne,

My hepatologist told me not to take Advil

(ibuprofen) because of its adverse effects to the liver. There have been some

discussions about this before on this forum without a clear conclusion, but I

prefer to take paracetamol to avoid any problems.

Regards,

Chaim Boermeester, Israel

From:

[mailto: ] On Behalf Of JoAnne W

Sent: Sunday, November 23, 2008

16:04

To:

Subject: Re:

Re:Multiple ERCP's?? JoAnne

Thanks ,

It helps

to hear that I am not the only one feeling these symptoms; the doctors are

always questioning me. They have not diagnosed me with UC although I

have all the symptoms, they are saying it is acid and they think it going

down instead of up sometimes. We are starting with Prilosec for two weeks

them stop. I get Advil 200 mg over the counter for pain and if the

diarrhea gets worse I get to take Imodium. I think I need to find someone

that is more knowledgeable in PSC, but the problem is I have an HMO and my

hands are tied. So I am going to take your advise and pressed on and see if

they will elevate my case. It is hard when your lab look good and mine

do!

I am in southern California

right in-between Riverside and San Diego

near Temecula.

Thanks for your advise!

JoAnne Wisdom

PSC 2007, Riverside

CA

ear Temecula.

I have

been getting ERCP's every 6 months and this was supposed to be

my 6th in August. I made the point to the Doc that since the last two

ERCP's didn't turn up any sludge or stones could we just roll the dice

for a while? He made me wait until they received my blood results, but

let me go without it. I am having ULQ pain from time to time, but

other than that I feel fine.

Don't get in a rut and just go along with the every so often plan if

your situation doesn't require it. It will cut down the medical bills

and the ERCP is less than pleasant. So until anything changes in my

bloodwork, I am rolling the dice. Of course if I start feeling bad I

will go in. They wanted to give me ERCP #6 the next morning after #5

since we went to the ER with pain. A transplant doc was on call that

night and I was there until 1:00 AM, but we talked some reason into

them when the blood work came in.

My pain is more frequent, the writing is on the wall, but I want to

put it off as long as possible (within reason of course).

in Minnesota

PSC 2006

--

Ian Cribb P.Eng.

[Guest guest]

JoAnne,

My hepatologist told me not to take Advil

(ibuprofen) because of its adverse effects to the liver. There have been some

discussions about this before on this forum without a clear conclusion, but I

prefer to take paracetamol to avoid any problems.

Regards,

Chaim Boermeester, Israel

From:

[mailto: ] On Behalf Of JoAnne W

Sent: Sunday, November 23, 2008

16:04

To:

Subject: Re:

Re:Multiple ERCP's?? JoAnne

Thanks ,

It helps

to hear that I am not the only one feeling these symptoms; the doctors are

always questioning me. They have not diagnosed me with UC although I

have all the symptoms, they are saying it is acid and they think it going

down instead of up sometimes. We are starting with Prilosec for two weeks

them stop. I get Advil 200 mg over the counter for pain and if the

diarrhea gets worse I get to take Imodium. I think I need to find someone

that is more knowledgeable in PSC, but the problem is I have an HMO and my

hands are tied. So I am going to take your advise and pressed on and see if

they will elevate my case. It is hard when your lab look good and mine

do!

I am in southern California

right in-between Riverside and San Diego

near Temecula.

Thanks for your advise!

JoAnne Wisdom

PSC 2007, Riverside

CA

ear Temecula.

I have

been getting ERCP's every 6 months and this was supposed to be

my 6th in August. I made the point to the Doc that since the last two

ERCP's didn't turn up any sludge or stones could we just roll the dice

for a while? He made me wait until they received my blood results, but

let me go without it. I am having ULQ pain from time to time, but

other than that I feel fine.

Don't get in a rut and just go along with the every so often plan if

your situation doesn't require it. It will cut down the medical bills

and the ERCP is less than pleasant. So until anything changes in my

bloodwork, I am rolling the dice. Of course if I start feeling bad I

will go in. They wanted to give me ERCP #6 the next morning after #5

since we went to the ER with pain. A transplant doc was on call that

night and I was there until 1:00 AM, but we talked some reason into

them when the blood work came in.

My pain is more frequent, the writing is on the wall, but I want to

put it off as long as possible (within reason of course).

in Minnesota

PSC 2006

--

Ian Cribb P.Eng.

[Guest guest]

I still don't

understand why acetaminophen (Tylenol) is preferred over ibuprofen

(Advil/Motrin) for PSC. There's no question that ibuprofen is almost

entirely processed through the kidneys, and acetaminophen is almost

entirely processed by the liver. There are far more reports of

hepatotoxicity with acetaminophen than ibuprofen. I do

understand that ibuprofen may flare UC/Crohns, but that can generally

be treated much easier than PSC (as in a transplant!).

Anyone have an idea why they recommend acetaminophen? I cannot find

anything on the internet that would suggest that, other than for those

with Hep C.

Arne

....My hepatologist told me not to take

Advil (ibuprofen) because of its adverse effects to the liver...

[Guest guest]

I still don't

understand why acetaminophen (Tylenol) is preferred over ibuprofen

(Advil/Motrin) for PSC. There's no question that ibuprofen is almost

entirely processed through the kidneys, and acetaminophen is almost

entirely processed by the liver. There are far more reports of

hepatotoxicity with acetaminophen than ibuprofen. I do

understand that ibuprofen may flare UC/Crohns, but that can generally

be treated much easier than PSC (as in a transplant!).

Anyone have an idea why they recommend acetaminophen? I cannot find

anything on the internet that would suggest that, other than for those

with Hep C.

Arne

....My hepatologist told me not to take

Advil (ibuprofen) because of its adverse effects to the liver...

[Guest guest]

I still don't

understand why acetaminophen (Tylenol) is preferred over ibuprofen

(Advil/Motrin) for PSC. There's no question that ibuprofen is almost

entirely processed through the kidneys, and acetaminophen is almost

entirely processed by the liver. There are far more reports of

hepatotoxicity with acetaminophen than ibuprofen. I do

understand that ibuprofen may flare UC/Crohns, but that can generally

be treated much easier than PSC (as in a transplant!).

Anyone have an idea why they recommend acetaminophen? I cannot find

anything on the internet that would suggest that, other than for those

with Hep C.

Arne

....My hepatologist told me not to take

Advil (ibuprofen) because of its adverse effects to the liver...

[Guest guest]

My GI also recommends acetaminophen, and I believe it is due to CD. I

have been in remission from CD for years, but I do have duodenitis

from chronic nsaid use. I simply try and avoid them both to be honest,

I think I would rather deal with a headache than worry about which

part of my body I am taxing more by treating it.

ee