Guest guest Posted February 17, 2009 Report Share Posted February 17, 2009 Hey there, Tom Fenton 41y/male with PSC/NASH/stage 3 liver disease with cirrhosis. Had Ulcerative Colitis for ten years and developed cancer and so had colectomy in 1997. Since then, I have elevated alt/ast/alk phos. My liver is enlarged and I have quite a bit of pain. In addition, I have an ependymomas at t10-t11 in my spinal cord. It too, is a autoimmune tumor of my spinal cord which is ganglion and therefore nearly impossible to remove without paralysis. I am on nearly 30 pills a day including Oxycontin, fentanyl patch, amaryl, spirotolatone, lasix, baclofen, xanax, glucafage, rampmil, and a few others. I was turned down for a liver transplant by CU Hospital for BMI, Diabetes, Pulmonary Arterial Hypertension, and an existing tumor of the spinal cord. All in all they felt I was a bad risk. I take milk thistle for my liver and am a Christian who prays, but in truth am at the end of my rope in coping with all of the stress and comorbidities. Anybody out there know of any good books on PSC? How about any homeopathic remedies that you have tried tha have offered relief. I'm only 41 and life is pretty crappy right now and the doctors tell me its just a matter of time, but I've already had the disease for 7 years and can still work. Anyone know what I can expect? Any thoughts? Quote Link to comment Share on other sites More sharing options...
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