Guest guest Posted April 8, 2009 Report Share Posted April 8, 2009 or anyone else who can find an answer, I have not been able to find information about eligibility for transplant with concurrent systemic autoimmune diseases (say replapsing polychondritis or wegener's granulamatosis or even both). I have a friend that got multiple transplants (5+), but he had one disease process: hollow viscous myopathy. He has lived about 7 years now, but his quality of life is severely limited. I have an opportunity to consult with the chief liver transplant surgeon in the Intermountain West on Apr 18. My uncle knows him kind of and talked to him about me, and he offered to see me for a consult. I really want to have focused questions ready to ask him. I'm very concerned about going to the best place for my overall health since I have been dx with Relapsing Polychondritis and we've discovered there is something the matter with my kidneys. I don't know how to light a fire under doctors. I would really like to get some tests done to find out exactly what is going on with my kidneys. If anyone has any ideas or information I would appreciate any and all. Doctors never seem to feel the urgency that we patients do, do they? Thanks for any help, take care, Cheryl ID, 50, PSC/UC/RP/undx kidney problem Quote Link to comment Share on other sites More sharing options...
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