Re: Deb's experience with needing adrenal support-- comments

[Guest guest]

Not to make light of all this, but.... " Just shoot me " .

Kathy

> I know some out here think Tish is over exagerating the adrenal

issue but,

> join the 's group and you will see why. They will tell you

it can

> kill you and will warn you to be extremely careful with any kind of

steroid

> treatment. Not to mention nearly everyone on the board has osteo

due to the

> steroids robbing their body of calcium. You have pretty severe

muscle

> waisting that occurs also when taking steroids. If it were not for

me

> spending time listening to other patients on the board, I

would not

> have realized just how dangerous it can get. A couple have

seriously nearly

> died from not getting enough Cortisone. Like Tish said, it is rare

but does

> happen. If you look at 's disease as a whole it is labeled

a rare

> disease and there are not that many diagnosed with it vs. thyroid

patients.

> I also have been on treatment for adrenal fatigue for a year and I

can say

> there were a few times that I thought I would have to go to the

hospital

> from it. If you go interview some of the folks on the

board they

> will inform you that they will not give you adrenal dosage

information...the

> first thing they will emphasize is to get a doctor who KNOWS how to

treat

> the adrenals first due to how dangerous it can be. I think Meg on

the yahoo

> addisons board can tell you first hand how many times she has

nearly died

> due to steroids. Again, it is rare but like Tish said it doesn't

hurt to

> provide folks with this information and although rare, it does

happen. I

> can say that I have had several close calls where my body burned

the little

> 20mg you get so quickly that I went into a hypoglycemic episode

followed by

> 3 days of pure exhaustion and severe symptoms. To the degree my

doctor

> doubled my steroid dose for 3-4 days so I could recover without

going to the

> hospitol. Certainly I don't want to scare anyone, but I think it's

> important to share our expieriences though and my expierience

is...don't

> self dose the adrenals...it's dangerous. Hope this helps ....

>

> Be well!

> LaCretia

>

> >

> >

> >

> >I started out on just on 25 mcg of Levoxyl and if I had not had

such

> >devastating effects from just that tiny amount without adrenal

> >support, I would not be so paranoid and cautious as I am. Because

it

> >did such terrible things to me, I do not want to make light of the

> >dangers. If the person was older and had been hypo many years and

> >had developed cardiovascular disease, this sort of self medicating

> >could cause serious problems and even death in my opinion. So, Ok

it

> >is probably rare, but I sure do not want that guilt on my concience

> >from someone not taking the risks seriously and me making too light

> >of them.

> >

> >Tish

> >

> >

> >

> >

> >

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> >