Re: Fatigue and the PSC Conference (answer to Margie)

[Guest guest]

Sandi, thanks for your suggestion that my daughter in the Chicago

suburbs accompany me to the conference with or without my husband so

he and I can take care of each other. I'll decide closer to the

deadline for registering. Hopefully I will remain seizure-free from

now on, since I am off Asacol, am taking Xifaxan (which a lot of

other PSCers are taking for brain fog) to keep my ammonia level down,

and am trying to avoid unnecessary stress.

Margie in MO

PSC DX 3/99

[Guest guest]

Sandi, thanks for your suggestion that my daughter in the Chicago

suburbs accompany me to the conference with or without my husband so

he and I can take care of each other. I'll decide closer to the

deadline for registering. Hopefully I will remain seizure-free from

now on, since I am off Asacol, am taking Xifaxan (which a lot of

other PSCers are taking for brain fog) to keep my ammonia level down,

and am trying to avoid unnecessary stress.

Margie in MO

PSC DX 3/99

[Guest guest]

Sandi, thanks for your suggestion that my daughter in the Chicago

suburbs accompany me to the conference with or without my husband so

he and I can take care of each other. I'll decide closer to the

deadline for registering. Hopefully I will remain seizure-free from

now on, since I am off Asacol, am taking Xifaxan (which a lot of

other PSCers are taking for brain fog) to keep my ammonia level down,

and am trying to avoid unnecessary stress.

Margie in MO

PSC DX 3/99

[Guest guest]

Cheryl, no I am not listed yet. Hopefully I am a long way off from

needing a liver transplant. Although I was diagnosed 10 years ago

(after an ERCP because of highly elevated liver enzymes discovered

during routine blood testing), I am not doing that badly. Like lots of

other PSCers, I am taking lots of RX medicines and OTC supplements. I

cannot take anything to alter my sleep cycle, so I just adapt to it.

Margie in MO

PSC DX 3/99