Guest guest Posted February 23, 2009 Report Share Posted February 23, 2009 Anita- There are two kinds of chills that my husband gets. He will get chills that will subside usually with just a warming blanket and then there are the "rigors". The rigors come on suddenly where he will uncontrollably shake for about an hour and a half. I usually have to hold him. During this time, his heart rate will go up and he will spike a fever to about 102.9. I monitor his BP also. Most of the time after this, his urine will turn very dark. I have been told it is a cholangitis attack. His fever usually breaks in about 4 hours. What I have learned to watch for (I have invested in a good BP/HR electronic cuff) is his heart rate going up rapidly while his BP drops. This is the indicator to get to the hospital. At times he feels ok when this happens (but he is not) and he is just severely fatigued and dry mouthed. The last time (two weeks ago) when this happened,his BP was 55/28 and his heart rate was 130. It happened with the blink of an eye. Called an ambulance. He again had ecoli in his blood stream from the bile getting to thick. Other times, he is dehydrated which also calls for a visit to the ER. My husbands PSC is so unpredictable that I monitor it all of the time. I never assume anything. Good Luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2009 Report Share Posted February 23, 2009 I’ll check BP - thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2009 Report Share Posted February 23, 2009 I’ll check BP - thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2009 Report Share Posted February 23, 2009 I’ll check BP - thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2009 Report Share Posted February 26, 2009 The chills are brutal and tend to follow the pattern of the cholangitis. My sugar also drops when the chills come. Hope and pray for the best for you guys. > > Anita- > There are two kinds of chills that my husband gets. He will get chills that will subside usually with just a warming blanket and then there are the " rigors " . The rigors come on suddenly where he will uncontrollably shake for about an hour and a half. I usually have to hold him. During this time, his heart rate will go up and he will spike a fever to about 102.9. > I monitor his BP also. Most of the time after this, his urine will turn very dark. I have been told it is a cholangitis attack. His fever usually breaks in about 4 hours. > > What I have learned to watch for (I have invested in a good BP/HR electronic cuff) is his heart rate going up rapidly while his BP drops. This is the indicator to get to the hospital. > At times he feels ok when this happens (but he is not) and he is just severely fatigued and dry mouthed. The last time (two weeks ago) when this happened,his BP was 55/28 and his heart rate was 130. It happened with the blink of an eye. Called an ambulance. He again had ecoli in his blood stream from the bile getting to thick. Other times, he is dehydrated which also calls for a visit to the ER. > > My husbands PSC is so unpredictable that I monitor it all of the time. I never assume anything. > > Good Luck. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2009 Report Share Posted February 26, 2009 The chills are brutal and tend to follow the pattern of the cholangitis. My sugar also drops when the chills come. Hope and pray for the best for you guys. > > Anita- > There are two kinds of chills that my husband gets. He will get chills that will subside usually with just a warming blanket and then there are the " rigors " . The rigors come on suddenly where he will uncontrollably shake for about an hour and a half. I usually have to hold him. During this time, his heart rate will go up and he will spike a fever to about 102.9. > I monitor his BP also. Most of the time after this, his urine will turn very dark. I have been told it is a cholangitis attack. His fever usually breaks in about 4 hours. > > What I have learned to watch for (I have invested in a good BP/HR electronic cuff) is his heart rate going up rapidly while his BP drops. This is the indicator to get to the hospital. > At times he feels ok when this happens (but he is not) and he is just severely fatigued and dry mouthed. The last time (two weeks ago) when this happened,his BP was 55/28 and his heart rate was 130. It happened with the blink of an eye. Called an ambulance. He again had ecoli in his blood stream from the bile getting to thick. Other times, he is dehydrated which also calls for a visit to the ER. > > My husbands PSC is so unpredictable that I monitor it all of the time. I never assume anything. > > Good Luck. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2009 Report Share Posted February 26, 2009 The chills are brutal and tend to follow the pattern of the cholangitis. My sugar also drops when the chills come. Hope and pray for the best for you guys. > > Anita- > There are two kinds of chills that my husband gets. He will get chills that will subside usually with just a warming blanket and then there are the " rigors " . The rigors come on suddenly where he will uncontrollably shake for about an hour and a half. I usually have to hold him. During this time, his heart rate will go up and he will spike a fever to about 102.9. > I monitor his BP also. Most of the time after this, his urine will turn very dark. I have been told it is a cholangitis attack. His fever usually breaks in about 4 hours. > > What I have learned to watch for (I have invested in a good BP/HR electronic cuff) is his heart rate going up rapidly while his BP drops. This is the indicator to get to the hospital. > At times he feels ok when this happens (but he is not) and he is just severely fatigued and dry mouthed. The last time (two weeks ago) when this happened,his BP was 55/28 and his heart rate was 130. It happened with the blink of an eye. Called an ambulance. He again had ecoli in his blood stream from the bile getting to thick. Other times, he is dehydrated which also calls for a visit to the ER. > > My husbands PSC is so unpredictable that I monitor it all of the time. I never assume anything. > > Good Luck. > > > > > > Quote Link to comment Share on other sites More sharing options...
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