Newly diagnosed, with questions

[Guest guest]

Hello! My name is Youske from Portland, OR. I'm 37 yrs old, originally from Japan. I was diagnosed with PSC 2 weeks ago after an MRI/MRCP and a liver biopsy (from which I had an internal bleed and lost over 40% of my blood volume! Thank goodness I've recovered from that now.). So I have some questions and I would be grateful for your suggestions/opinions.

1. I'm planning to get a second opinion re: diagnosis and treatment, and my Hepatologist suggested the Mayo Clinic in Rochester, MN. Any suggestions on the best doctors at Mayo Clinic in terms of experience/expertise with PSC? I would like a doctor who is concerned foremost re: our well being as an individual rather than being quick to recruit us for some kind of clinical trial. 2. I also would like to know what kinds of alternative treatment are available, such as naturopathic, Chinese medicine, etc. Recommended diet for someone with PSC would be very helpful as well. (My PCP who is well versed re: naturopathy, dietary supplements, etc, suggested the Anti-Inflammation diet and told me to get a book on this by Black, ND, as PSC is most fundamentally an inflammatory process according to her.)

Thank you so much in advance for your help and I look forward to this wonderful forum of support!

Youske