Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Thank you for being so understanding. It helps to know that others can relate to me. I know that I need to educate my Husband as well as myself. But I have really been having a rough time of it because he makes me think it is in my head and I am letting the illness take over if I rest and put things aside, but then when I push myself like I have the past few weeks by painting 2 rooms, moving 2 rooms around as well as caring for the normal everyday things w/ the kids ( a 3yr old & 10 month old) and I hit the bottom and am in horrible pain, can't sleep, can't really do much of anything he tells me he has 2 kids already he doesn't need another one because i can't take care of myself. I just get so angry because he is supposed to be the one to help me through things, but I know he won't ,at least not until he understands this is a real problem. Ok now that I have vented. I do need help from the group. Does anyone have any suggestions for me on how to sleep better, feel better, be able to handle the daily responsibilities. Since I am new to the group and just recently diagnosed please forgive me if I am completely ignorant to CFS &Fibro. Thanks To ... I've been married for 18 years and my husband has 'doubted' my disease more often than not. Just recently he's started to see that my problems are real--he sees the spasms, and sees me falling and dropping things, and i've tried very hard not to complain about ANY pain unless it is really affecting me! And I will often find articles for him to read, and although he says he understands, sometimes I hear him say things that make me think he 'really doesn't understand', which is why this group is so darn important, it's the only place I feel that I can say anything and everyone knows exactly what i'm talking about!..the hardest thing for me has been the times i've tried to just push through the flare, and end up getting tired and irritable..and keeping it to myself becomes more difficult, and I end up taking my pain out on him, which I try very hard not to do, as it's not the best way to cope with this problem(IMO). I don't think that he understands how I can go hiking through 'Cambodia' all day and 2 days later, I can't get out of bed or barely feed myself...and I don't understand it either. kmnewberry@... _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Thank you for being so understanding. It helps to know that others can relate to me. I know that I need to educate my Husband as well as myself. But I have really been having a rough time of it because he makes me think it is in my head and I am letting the illness take over if I rest and put things aside, but then when I push myself like I have the past few weeks by painting 2 rooms, moving 2 rooms around as well as caring for the normal everyday things w/ the kids ( a 3yr old & 10 month old) and I hit the bottom and am in horrible pain, can't sleep, can't really do much of anything he tells me he has 2 kids already he doesn't need another one because i can't take care of myself. I just get so angry because he is supposed to be the one to help me through things, but I know he won't ,at least not until he understands this is a real problem. Ok now that I have vented. I do need help from the group. Does anyone have any suggestions for me on how to sleep better, feel better, be able to handle the daily responsibilities. Since I am new to the group and just recently diagnosed please forgive me if I am completely ignorant to CFS &Fibro. Thanks To ... I've been married for 18 years and my husband has 'doubted' my disease more often than not. Just recently he's started to see that my problems are real--he sees the spasms, and sees me falling and dropping things, and i've tried very hard not to complain about ANY pain unless it is really affecting me! And I will often find articles for him to read, and although he says he understands, sometimes I hear him say things that make me think he 'really doesn't understand', which is why this group is so darn important, it's the only place I feel that I can say anything and everyone knows exactly what i'm talking about!..the hardest thing for me has been the times i've tried to just push through the flare, and end up getting tired and irritable..and keeping it to myself becomes more difficult, and I end up taking my pain out on him, which I try very hard not to do, as it's not the best way to cope with this problem(IMO). I don't think that he understands how I can go hiking through 'Cambodia' all day and 2 days later, I can't get out of bed or barely feed myself...and I don't understand it either. kmnewberry@... _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Thank you for being so understanding. It helps to know that others can relate to me. I know that I need to educate my Husband as well as myself. But I have really been having a rough time of it because he makes me think it is in my head and I am letting the illness take over if I rest and put things aside, but then when I push myself like I have the past few weeks by painting 2 rooms, moving 2 rooms around as well as caring for the normal everyday things w/ the kids ( a 3yr old & 10 month old) and I hit the bottom and am in horrible pain, can't sleep, can't really do much of anything he tells me he has 2 kids already he doesn't need another one because i can't take care of myself. I just get so angry because he is supposed to be the one to help me through things, but I know he won't ,at least not until he understands this is a real problem. Ok now that I have vented. I do need help from the group. Does anyone have any suggestions for me on how to sleep better, feel better, be able to handle the daily responsibilities. Since I am new to the group and just recently diagnosed please forgive me if I am completely ignorant to CFS &Fibro. Thanks To ... I've been married for 18 years and my husband has 'doubted' my disease more often than not. Just recently he's started to see that my problems are real--he sees the spasms, and sees me falling and dropping things, and i've tried very hard not to complain about ANY pain unless it is really affecting me! And I will often find articles for him to read, and although he says he understands, sometimes I hear him say things that make me think he 'really doesn't understand', which is why this group is so darn important, it's the only place I feel that I can say anything and everyone knows exactly what i'm talking about!..the hardest thing for me has been the times i've tried to just push through the flare, and end up getting tired and irritable..and keeping it to myself becomes more difficult, and I end up taking my pain out on him, which I try very hard not to do, as it's not the best way to cope with this problem(IMO). I don't think that he understands how I can go hiking through 'Cambodia' all day and 2 days later, I can't get out of bed or barely feed myself...and I don't understand it either. kmnewberry@... _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Hello there! I am on the opposite end - since I do not have Fibro, and my girlfriend does, I, along with her, am trying to understand what is happening. Like , ie can go all out some days at work - but for the past week, she has been in bed, at times virtually unable to get up and do anything. Just the other night, she walked down the hall from the bedroom to the den/kitchen, and had to sit down and re-build her energy for the return trip. There are periods where she will sleep for 17 hours, and there are periods where insomnia or broken sleep occurs. I understand the problem (but there are some things that just seem hard to comprehend at times) and I want to be as understanding and helpful, while at the same time allowing her to have her independence, because she is a very proud lady. She's taken a lot of the herbs and a few of the medications, because she is new to this. There are times she will take NADH, and not get any benefit from it. Other times there is a limited benefit, and others there is outstanding benefit - is that normal, or can the body build up a tolerance to the drug. Or am I going crazy? I know she wants to get and feel better, in order to have a higher quality of life than she is right now. I sometimes feel like I am not giving her enough room in coping with this disease (syndrome). But I don't want her to think I have turned away from her because of the Fibro, and I don't want to suffocate her either with my presence, which I feel is overbearing at times. What's a guy to do? I just hope she isn't expecting too much too soon as far as feeling better or a form of recovery, because in a way, I think I want too much too soon for her. Jay. jbsko@... wrote: >Thank you for being so understanding. It helps to know that others can relate to me. I know that I need to educate my Husband as well as myself. But I have really been having a rough time of it because he makes me think it is in my head and I am letting the illness take over if I rest and put things aside, but then when I push myself like I have the past few weeks by painting 2 rooms, moving 2 rooms around as well as caring for the normal everyday things w/ the kids ( a 3yr old & 10 month old) and I hit the bottom and am in horrible pain, can't sleep, can't really do much of anything he tells me he has 2 kids already he doesn't need another one because i can't take care of myself. > >I just get so angry because he is supposed to be the one to help me through things, but I know he won't ,at least not until he understands this is a real problem. > >Ok now that I have vented. I do need help from the group. > > Does anyone have any suggestions for me on how to sleep better, feel better, be able to handle the daily responsibilities. Since I am new to the group and just recently diagnosed please forgive me if I am completely ignorant to CFS &Fibro. > >Thanks > To ... > > > I've been married for 18 years and my husband has 'doubted' my disease more > often than not. Just recently he's started to see that my problems are > real--he sees the spasms, and sees me falling and dropping things, and i've > tried very hard not to complain about ANY pain unless it is really affecting > me! And I will often find articles for him to read, and although he says he > understands, sometimes I hear him say things that make me think he 'really > doesn't understand', which is why this group is so darn important, it's the > only place I feel that I can say anything and everyone knows exactly what > i'm talking about!..the hardest thing for me has been the times i've tried > to just push through the flare, and end up getting tired and irritable..and > keeping it to myself becomes more difficult, and I end up taking my pain out > on him, which I try very hard not to do, as it's not the best way to cope > with this problem(IMO). I don't think that he understands how I can go > hiking through 'Cambodia' all day and 2 days later, I can't get out of bed > or barely feed myself...and I don't understand it either. > > kmnewberry@... > > > _________________________________________________________________ > MSN Photos is the easiest way to share and print your photos: > http://photos.msn.com/support/worldwide.aspx > > > Quote Link to comment Share on other sites More sharing options...
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