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Re: Just joining!! - Tom

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Tom,

Hi. Welcome to the group. :) I'm sorry to hear you've been going through such

a rough time. I'm glad you found us!

I'm not sure there is a book on PSC...although you could always read

Hussey's I'm Not Okay, You're Not Okay but That's Okay With God. It'll, at the

very least, make you laugh out loud and the proceeds benefit PSC Partners (at

least in part). Either or I can give you more info on how to order if

you're interested.

You asked about things that could help with symptoms. Which symptoms are you

dealing with/trying to relieve? We're all so different that there really isn't

a " standard " set of symptoms. Some of the things I've heard from doctors/psc

patients/research, etc. that you can do to help include accupuncture, tanning

(helps to relieve itching), Sam-E (helps with depression, I believe), reike,

trying to keep a low-fat diet and keep an eye on your fat soluble vitamins as we

tend to run low in them (things like A, D, K and calcium). Try to keep stress

at a minimum (lol--right! I love when I'm told that one!) And one thing that I

find helps me is trying to look on the positive side. I'm a big believer in

laugh over cry and sometimes just choosing to laugh really can make things a bit

better at least for the moment.

Hopefully others will chime in with things to help, too!

Sandi in VA

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