Re: Deb's experience with needing adrenal support-- comments/LaCretia

[Guest guest]

Hi LaCretia,

Well, alrighty then...misery loves company! LOL

Even though you probably already covered this, I am too lazy to look

back....why are you coming off the Cortef?

All this is starting to scare me...maybe because I'm not too sure of

myself these days and can't trust my own decisions.

Kathy

> > > I know some out here think Tish is over exagerating the adrenal

> >issue but,

> > > join the 's group and you will see why. They will tell

you

> >it can

> > > kill you and will warn you to be extremely careful with any

kind of

> >steroid

> > > treatment. Not to mention nearly everyone on the board has

osteo

> >due to the

> > > steroids robbing their body of calcium. You have pretty severe

> >muscle

> > > waisting that occurs also when taking steroids. If it were not

for

> >me

> > > spending time listening to other patients on the board,

I

> >would not

> > > have realized just how dangerous it can get. A couple have

> >seriously nearly

> > > died from not getting enough Cortisone. Like Tish said, it is

rare

> >but does

> > > happen. If you look at 's disease as a whole it is

labeled

> >a rare

> > > disease and there are not that many diagnosed with it vs.

thyroid

> >patients.

> > > I also have been on treatment for adrenal fatigue for a year

and I

> >can say

> > > there were a few times that I thought I would have to go to the

> >hospital

> > > from it. If you go interview some of the folks on the

> >board they

> > > will inform you that they will not give you adrenal dosage

> >information...the

> > > first thing they will emphasize is to get a doctor who KNOWS

how to

> >treat

> > > the adrenals first due to how dangerous it can be. I think Meg

on

> >the yahoo

> > > addisons board can tell you first hand how many times she has

> >nearly died

> > > due to steroids. Again, it is rare but like Tish said it

doesn't

> >hurt to

> > > provide folks with this information and although rare, it does

> >happen. I

> > > can say that I have had several close calls where my body burned

> >the little

> > > 20mg you get so quickly that I went into a hypoglycemic episode

> >followed by

> > > 3 days of pure exhaustion and severe symptoms. To the degree my

> >doctor

> > > doubled my steroid dose for 3-4 days so I could recover without

> >going to the

> > > hospitol. Certainly I don't want to scare anyone, but I think

it's

> > > important to share our expieriences though and my expierience

> >is...don't

> > > self dose the adrenals...it's dangerous. Hope this helps ....

> > >

> > > Be well!

> > > LaCretia

> > >

> > > >

> > > >

> > > >

> > > >I started out on just on 25 mcg of Levoxyl and if I had not had

> >such

> > > >devastating effects from just that tiny amount without adrenal

> > > >support, I would not be so paranoid and cautious as I am.

Because

> >it

> > > >did such terrible things to me, I do not want to make light of

the

> > > >dangers. If the person was older and had been hypo many years

and

> > > >had developed cardiovascular disease, this sort of self

medicating

> > > >could cause serious problems and even death in my opinion. So,

Ok

> >it

> > > >is probably rare, but I sure do not want that guilt on my

concience

> > > >from someone not taking the risks seriously and me making too

light

> > > >of them.

> > > >

> > > >Tish

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >