What is a cholangitis attack?

[Guest guest]

>

> Beth,

>

> I'm new to the site and was diagnosed with PSC in Dec 2008 right before I had

a colectomy.  What isa a cholangitis attack??  In dec while in the hosp my ALK

was 220, Bilirubin ok,  and ALT a little high(80).  I have no symptoms and feel

fine.  Keep m,yself in good shape, eat right, etc.sdMy last blood.  Jusyt

wondering

>

> thanks, Dundee Tom 

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>  

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> ________________________________

> From: b_brandel58

> To:

> Sent: Saturday, March 28, 2009 8:48:43 PM

> Subject: Re: transplant question

>

>

>

> > >> Does anyone know how long it takes to reoccur if it is going to?

> > >

> >

> >

> > I do not know of a specific time line for PSC to reoccur. I had my

transplant in May 2006, and was dx with the return of PSC in Nov 2008. I was so

surprised that this could happen two and a half years post transplant. My

transplant team said they were concerned that it returned that soon but there

was not an explanation as to what the timing should be.

> >>>>>

>

> This sounds a lot alike s posting I found on the J-pouch group..a person had

been told that having a pouch created was doomed to fail--all pouchs fail. I can

tell you for anyone here with a pouch that there is no specific length of time

until a pouch fails. I have had mine for over 25 years, and after a scope was

told that my pouch looks like brand new.

>

> I also agree in the philosophy to just live one day at a time and don't let

PSC run your life. I was diagnosed June 2008. And did not let it ruin my life

plans. I have since started nursing school in January 2009, and plan to continue

life as if I don't have PSC, except to take my meds, eat healthy, and get the

tests that my GI wants me to get.

>

> I will have ERCPs done in May and December of both this year 2009 and 2010,

just so that I can make sure that I don't have things building up in my duct

that could cause me to have a cholangitis attack while I in school. My GI and I

are just being proactive to make sure that I can make it through school and

hopefully not have any attacks. After I was diagnosed in June of last year I had

a cholangitis attack in August, September and October. But once we got my URSO

at the right dose and I make sure that I drink lots of water and eat healthy. I

have not had any attacks.

>

> I will continue to live my live as if I don't have PSC, and not worry about

any problems including my possible need of a transplant until that time comes.

>

> Just my two cents,

>

> Beth B--Thornton, CO

>