Deanna - Fevers

[Guest guest]

Thanks for the words of encouragement, I can always use them. I'm glad I finally found you guys cause even though my husband stands by me through all of this, he still really doesn't understand.

I also keep telling myself that I don't want to let this disease get the best of me but sometimes it's hard. Like.... I still want to do things I've always done but my husband doesn't want to cause he worries about me getting so worn out. It's nice that he worries about me but yet I'm not ready to stop living yet. Now what I mean?

Dawn Marie

Re: Dawn Marie - Fevers

Your welcome Dawn, and I wish you didn't have to go through any of this, but at least you have all of us to go thru this with.....It's difficult to function at times, and there have been many times that I have wanted to give in to this disease - trust me, I think it's been at least 1 year since I have had any sort of break - most likely longer alot of the members can tell you - I seem to be the one who doesn't get any breaks whatsoever - but I "try" to listen to my body if it says rest, then I rest, but then I also push myself which in the long runs makes things worse for me - you have to be a fighter! For me I just keep saying to myself over and over in my head that I WILL NOT let this disease beat me- I mean in the end I know it will but until then I will fight this wolf until I just can't any longer. I just love my paxil - without it - I'd be gone.....As for how do I cope with the fevers, well it's difficult, I take 3 extra strength tylenol and deal with the chills, etc. that come with the high fevers and then within an hour or two the fever breaks until the next day. - When my body allows or at night when I can't sleep I go and play games at www.pogo.com it gets my mind off my health issues...Just try to hang in there hon, we are all here for you, alot of us have been in your shoes, but just remember NO 2 lupus patients are alike...HugsDeanna> Thanks Deanna,> > I'm sure sooner or later I'll get used to the fevers but as I've said, I'm> still so new to this. How do you function? I'll think that I'm better and> go out and try to do something and BOOM my fever comes back. I'm just> getting so tired of being cooped up all of the time. Well, in due time I> guess I'll learn to cope with this too.> > Dawn Marie"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies