To afjord or not to afjord the EASL Oslo

[Guest guest]

Hi,

so I have been waiting whether to register for the PSC conference in Oslo or

not. Waiting for how Eemeli's colonoscopy and ERC goes (pretty well, except for

the findings: PSC has progressed from intrahepatic to extrahepatic, colon was

pretty calm except for some swelling) and waiting for the results of the

brushings and biopsies. Now we got the results of the brushings and it turns out

that Eemeli's ducts have extremely active inflammation and the finding of the

colon biopsy from the swollen part in the right side is so atypical that it has

to be re-examined by pathologists and then discussed at a meeting before we know

more. It being in the right side brings to my mind Dave R's message from Feb 23

about the Utrecht study, yikes.

But I have to put in a good word for the endoscopic treatment used by Dr

Farkkila: Eemeli has been visibly better after the ERC where Dr Farkkila dilated

the extrahepatic ducts that had been narrowed since last year. It cannot be

psychological: Eemeli was not as worried about the treatment as I was. The plan

is to do the ERC once a year at least. And if it goes as well as this time, I

think it is GOOD. I'd be very interested in the discussion in Oslo on " critical

appraisal of endoscopic treatment " .

Are there many here who have decided to go to the EASL monothematic PSC

conference in Oslo? I will still wait to hear the results of Eemeli's colon

biopsy and if it causes any action.

Taru-Mari, mom of Eemeli (12) PSC 7/2003, UC 5/2008