Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Hello all, I have read most of the messages since joining last week, and have to admit learned more than I could have ever gleaned out of the many doctors I have seen. I went to see a Hep doc in San Francisco back in January. I was actually feeling better; the nausea was minimal, the pain was down, and the fatigue was better. When I returned home to New Mexico, all my symptoms came back and then some. Lately I've been getting extreme hot flashes followed by intense chills lasting sometimes for hours. I increased my compounded estrogen cream but it didn't help. I am up to four times the dose and still no help. I'm getting severe pain on the right side of my abdomen when I eat and then intense nausea. All the doctors I have seen just tell me that I will get sicker and then need a transplant. They didn't bother to say that the PSC would be causing any of my symptoms. Have any of you experienced the hot flashes followed by the chills? Could really use some help here. Thanks, Enid in NM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Enid, I’m sorry to be the bearer of the news, but chills, RUQ pain, and nausea might indicate a bout of cholangitis. Has your Dr. mentioned to you when it is time to seek medical help in the middle of a cholangitis bout? Are you running a fever at all (even low grade might indicate cholangitis). I would recommend that you place a call to your Dr. and describe your symptoms and ask how you should proceed. I’m sure that others with some more experience will be along shortly. Rick From: [mailto: ] On Behalf Of offgridaudio Sent: Wednesday, February 25, 2009 6:07 PM To: Subject: Not doing too well Hello all, I have read most of the messages since joining last week, and have to admit learned more than I could have ever gleaned out of the many doctors I have seen. I went to see a Hep doc in San Francisco back in January. I was actually feeling better; the nausea was minimal, the pain was down, and the fatigue was better. When I returned home to New Mexico, all my symptoms came back and then some. Lately I've been getting extreme hot flashes followed by intense chills lasting sometimes for hours. I increased my compounded estrogen cream but it didn't help. I am up to four times the dose and still no help. I'm getting severe pain on the right side of my abdomen when I eat and then intense nausea. All the doctors I have seen just tell me that I will get sicker and then need a transplant. They didn't bother to say that the PSC would be causing any of my symptoms. Have any of you experienced the hot flashes followed by the chills? Could really use some help here. Thanks, Enid in NM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Enid, I’m sorry to be the bearer of the news, but chills, RUQ pain, and nausea might indicate a bout of cholangitis. Has your Dr. mentioned to you when it is time to seek medical help in the middle of a cholangitis bout? Are you running a fever at all (even low grade might indicate cholangitis). I would recommend that you place a call to your Dr. and describe your symptoms and ask how you should proceed. I’m sure that others with some more experience will be along shortly. Rick From: [mailto: ] On Behalf Of offgridaudio Sent: Wednesday, February 25, 2009 6:07 PM To: Subject: Not doing too well Hello all, I have read most of the messages since joining last week, and have to admit learned more than I could have ever gleaned out of the many doctors I have seen. I went to see a Hep doc in San Francisco back in January. I was actually feeling better; the nausea was minimal, the pain was down, and the fatigue was better. When I returned home to New Mexico, all my symptoms came back and then some. Lately I've been getting extreme hot flashes followed by intense chills lasting sometimes for hours. I increased my compounded estrogen cream but it didn't help. I am up to four times the dose and still no help. I'm getting severe pain on the right side of my abdomen when I eat and then intense nausea. All the doctors I have seen just tell me that I will get sicker and then need a transplant. They didn't bother to say that the PSC would be causing any of my symptoms. Have any of you experienced the hot flashes followed by the chills? Could really use some help here. Thanks, Enid in NM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Enid, I’m sorry to be the bearer of the news, but chills, RUQ pain, and nausea might indicate a bout of cholangitis. Has your Dr. mentioned to you when it is time to seek medical help in the middle of a cholangitis bout? Are you running a fever at all (even low grade might indicate cholangitis). I would recommend that you place a call to your Dr. and describe your symptoms and ask how you should proceed. I’m sure that others with some more experience will be along shortly. Rick From: [mailto: ] On Behalf Of offgridaudio Sent: Wednesday, February 25, 2009 6:07 PM To: Subject: Not doing too well Hello all, I have read most of the messages since joining last week, and have to admit learned more than I could have ever gleaned out of the many doctors I have seen. I went to see a Hep doc in San Francisco back in January. I was actually feeling better; the nausea was minimal, the pain was down, and the fatigue was better. When I returned home to New Mexico, all my symptoms came back and then some. Lately I've been getting extreme hot flashes followed by intense chills lasting sometimes for hours. I increased my compounded estrogen cream but it didn't help. I am up to four times the dose and still no help. I'm getting severe pain on the right side of my abdomen when I eat and then intense nausea. All the doctors I have seen just tell me that I will get sicker and then need a transplant. They didn't bother to say that the PSC would be causing any of my symptoms. Have any of you experienced the hot flashes followed by the chills? Could really use some help here. Thanks, Enid in NM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Enid, Why are you on Estrogen? Does your liver specialist know this? Mine absolutely forbids any HRT, says it's very dangerous for people with compromised livers. Maybe the reason you are having pain right now ???? Quote Link to comment Share on other sites More sharing options...
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