Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 I would like to thank everyone for their warm welcome. This is my first time posting ever. I'm so excited to find a group that is so friendly and open minded. Well, I'm 29 years old. I have a 3 1/2 year old daughter and a 1 1/2 year old son, a husband, 2 dogs, 1 cat, and 1 fish. I started getting the first signs of Lupus back in 1998 when I was in Nursing school and working the night shift at a hospital. I kept coming home with low grade fevers every morning. Shortly after I started having trouble with my hands. I didn't go see a Rheumatologist until after graduation a year later. He diagnosed me as CTD with +ANA. My doctor is very careful about putting Lupus down on paper- for insurance reasons. He did not start calling it Lupus until this year. After each pregnancy I kept getting worse. I have Raynaud's, Sjogrens, HTN,arthritis, + anticardiolipin, I get the malar rash, and just recently- in the hot summer sun- I have become very photosensitive. I feel like a terrible mother because I cannot take my kids to the park or the zoo. Even with a hat on and loads of sunscreen I still get a flare if I'm outside more than 15 minutes. Even if I wait until 4 pm, I still start feeling bad. Texas is too darn hot!! This is mostly what I am struggling with right now- the sun is EVIL. I do not understand why I am so sensitive to the sun all of a sudden. If anyone knows of any good sun-defense products or of any tricks to ward off UV rays I would be most appreciative. I look foreward to getting to know you all better. I apoligize in advance for any delays in my messaging. I do not get to go online very ofter or for very long. Thanks, Annie Quote Link to comment Share on other sites More sharing options...
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