Recurring Infections

[Guest guest]

This is my first post to this group. My husband has PSC (and

UC/colon cancer 6-1/2 years ago). He is being evaluated for liver

transplant but not a candidate yet based on MELD.

He has spent 2 weeks out of the last 6 in the hospital, over 3

stays. First stay was inititated by fever following outpatient

ERCP. Developed fever a few days after ERCP and went back to ER and

diagnosed with cholangitis. While in hospital did another ERCP and

placed a stent in. Went home with PIC line and IV antibiotics for 10

days, and after completion 2 days later developed fever. Back to

hospital and no bugs this time but assumed stent was problem so did

another ERCP and removed it. He stayed in hospital for a week and

went home with PIC line again and IV antibiotics. Again after

completion 3 days later developed fever. Back to hospital again.

This time no source of fever was found. Suspect PIC line. Stayed

for 4 days and now home with oral antibiotics.

He is treated by top docs and a top hospital that are clearly experts

in PSC and bile duct infections but it is frustrating to have no real

answers. Anybody have similar stories of repeated infections and

unclear diagnosis?