What is a cholangitis attack?

[Guest guest]

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> Beth,

>

> I'm new to the site and was diagnosed with PSC in Dec 2008 right

before I had a colectomy.  What isa a cholangitis attack??  In dec

while in the hosp my ALK was 220, Bilirubin ok,  and ALT a little

high(80).  I have no symptoms and feel fine.  Keep m,yself in good

shape, eat right, etc.sdMy last blood.  Jusyt wondering

>

> thanks, Dundee Tom 

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>  

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> ________________________________

> From: b_brandel58 solarcheek@...

> To:

> Sent: Saturday, March 28, 2009 8:48:43 PM

> Subject: Re: transplant question

>

>

>

> > >> Does anyone know how long it takes to reoccur if it is going to?

> > >

> >

> >

> > I do not know of a specific time line for PSC to reoccur. I had my

transplant in May 2006, and was dx with the return of PSC in Nov 2008. I

was so surprised that this could happen two and a half years post

transplant. My transplant team said they were concerned that it returned

that soon but there was not an explanation as to what the timing should

be.

> >>>>>

>

> This sounds a lot alike s posting I found on the J-pouch group..a

person had been told that having a pouch created was doomed to fail--all

pouchs fail. I can tell you for anyone here with a pouch that there is

no specific length of time until a pouch fails. I have had mine for over

25 years, and after a scope was told that my pouch looks like brand new.

>

> I also agree in the philosophy to just live one day at a time and

don't let PSC run your life. I was diagnosed June 2008. And did not let

it ruin my life plans. I have since started nursing school in January

2009, and plan to continue life as if I don't have PSC, except to take

my meds, eat healthy, and get the tests that my GI wants me to get.

>

> I will have ERCPs done in May and December of both this year 2009 and

2010, just so that I can make sure that I don't have things building up

in my duct that could cause me to have a cholangitis attack while I in

school. My GI and I are just being proactive to make sure that I can

make it through school and hopefully not have any attacks. After I was

diagnosed in June of last year I had a cholangitis attack in August,

September and October. But once we got my URSO at the right dose and I

make sure that I drink lots of water and eat healthy. I have not had any

attacks.

>

> I will continue to live my live as if I don't have PSC, and not worry

about any problems including my possible need of a transplant until that

time comes.

>

> Just my two cents,

>

> Beth B--Thornton, CO

>