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I'M REALLY PISSED NOW!!

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Have you signed in to the Yahoo Group page lately? 8 new members

in 7 days! That’s

unbelievable. I’m thrilled

the new members are finding us, our

group is a definite life-line on-line for PSCer’s but come on, this is

supposed to be a *^~`* rare disease!

We have to do something to find a decent & successful

treatment or a cure, and the sooner the better!

I don’t have the time (like

last year) to privately send you a note about Ricky’s upcoming Birthday

(April 10th). So lets

get busy and send her a birthday card (with money in it – ANY amount will

help). Don’t feel motivated

to do it, or would rather sit back and procrastinate? Log on to the Yahoo Group site and look

through the photo section, then look through the “In Memory”

section. Those are our friends and

fellow PSCer’s! People who

have lost the fight against PSC, we have to carry on for them! I talked to Ruth this past weekend, the

pain of losing her son is still so strong I don’t

know how she carries on. I don’t want to see another mother face that same fate

and yet I know more will. I know

times are tough, Ken’s medical bills aren’t

fun either, but do we have a choice?

If we don’t fight this disease, who will……….?

Send a check made out to PSC Partners Seeking a Cure:

PSC

Partners Seeking a Cure

5237 So. Kenton Way

Englewood, CO 80111

Barb in Texas - Together in the Fight - Whatever it

Takes!

Son Ken (34) UC 91 PSC 99, LTX 6/21 &

6/30 2007 @ Baylor/Dallas

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