Re: Greetings (and a question)/early symptoms

[Guest guest]

,

Hi! I'm not sure if this is answering your question or helpful or not, but you

mentioned that you are having symptoms that don't seem to be consistent with

your stage. Is that right? I'm also in that situation. I have late stage PSC

symptoms but, according to my workups, I am only in Stage 2 of the disease. The

docs seem really confused by this and are actually in the process of looking

further into it to see what's going on. I do know that sometimes our labs look

better than we actually are and can be misleading but I'm not sure if this is

the case in staging or not.

Hope you get some answers and that you're feeling well!

Sandi in VA

[Guest guest]

,

Hi! I'm not sure if this is answering your question or helpful or not, but you

mentioned that you are having symptoms that don't seem to be consistent with

your stage. Is that right? I'm also in that situation. I have late stage PSC

symptoms but, according to my workups, I am only in Stage 2 of the disease. The

docs seem really confused by this and are actually in the process of looking

further into it to see what's going on. I do know that sometimes our labs look

better than we actually are and can be misleading but I'm not sure if this is

the case in staging or not.

Hope you get some answers and that you're feeling well!

Sandi in VA

[Guest guest]

,

Hi! I'm not sure if this is answering your question or helpful or not, but you

mentioned that you are having symptoms that don't seem to be consistent with

your stage. Is that right? I'm also in that situation. I have late stage PSC

symptoms but, according to my workups, I am only in Stage 2 of the disease. The

docs seem really confused by this and are actually in the process of looking

further into it to see what's going on. I do know that sometimes our labs look

better than we actually are and can be misleading but I'm not sure if this is

the case in staging or not.

Hope you get some answers and that you're feeling well!

Sandi in VA

[Guest guest]

Thanks, Sandi, and all, for the responses. It's great to hear I'm not

entirely alone in having early symptoms. I did start Urso Forte a

couple weeks ago, and I haven't felt this good in awhile--pain has

virtually disappeared and I feel more energetic. If the Urso

continues to work and keeps me from juandice etc., then I feel very

fortunate to have had these bad bouts early and had the diagnosis

before my liver has progressed too far. It is, albeit, a mixed

blessing. I'll let you know, Sandi, if I hear any theories about why

we're so fortunate.

>

> ,

>

> Hi! I'm not sure if this is answering your question or helpful or

not, but you mentioned that you are having symptoms that don't seem

to be consistent with your stage. Is that right? I'm also in that

situation. I have late stage PSC symptoms but, according to my

workups, I am only in Stage 2 of the disease. The docs seem really

confused by this and are actually in the process of looking further

into it to see what's going on. I do know that sometimes our labs

look better than we actually are and can be misleading but I'm not

sure if this is the case in staging or not.

>

> Hope you get some answers and that you're feeling well!

>

> Sandi in VA

>