Darcy- Irene/ads for hgh-adopting

July 19, 2002

Irene, I got the same ad! Someone had emailed me about a 'post' and thought

that I 'should' try hgh. It was obviously an ad....next time i'll pass it

on to Missy.

Darcy, back in the early 80's, I too, thought the disease was

psychological...there was NO disease or syndrome that matched my symptoms.

I felt I had no choice but to accept this.....after years of living with

this, and plenty of 'flare' time to think about it. I'm sure that it's NOT

all in my head.....my husband is more anxious than I am....I know that I

really FEEL the pain for NO reason....not because I 'don't have anything

else to complain about today'. Articles like that make me angry, and i've

been on a mission the past few months to educate any one who presumes to

'KNOW' that FMS or CFS is all in our head!

I raised both my kids with FMS, and I certainly would NOT want to try it

again. I'm 37, and it was way too hard for me...and sometimes it still is,

to try and be a good mother to a 7 and 13 year old. I used to take my 7

year old into bed with me when I was having a flare with all his toys and

jars of baby food that he'd need for the day. I have no family - so I had

to make due...and my 13 year old daughter, she is getting to that irritating

age, where at times....I say something to her and she says...whatever?, or

some other sarcasm.....

now that I think about it...you can adopt MY kids--they already know how to

deal with a mom in a flare--i'm sorry they've had to! (just kidding)

kmnewberry@...

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