surgery on j-pouch, risk of losing pouch

[Guest guest]

I'm sorry to jump right into another inquiry, but curve balls are

coming our way and I would appreciate whatever information anyone

might have. For those who have or had a j-pouch, did any of you ever

require surgery inside the pouch -to remove growths of any sort?

Were you able to keep your pouch or was it necessary to remove it and

replace it with an ostomy? My husband was admitted from the ER into

the hospital today/night and may need surgery on his pouch. We've

been told he may lose it with the surgery (if he needs surgery).

He's already been seen for over a year now for problems with his

pouch (and this growth) by a GI surgeon and we knew this was a risk

earlier on --had been told recently, though, that the risk was now

minimal. My husband began bleeding last night and it hasn't stopped,

which is what brought us to the ER today. It's suspected that the

growth has partly torn from the pouch wall. (My husband is not the

one who has ibd -our son does, but my husband does have a pouch due

to colon cancer yrs ago and that is why I am seeking the experience

here of others with pouches). I promised my husband I would ask here

if anyone with a pouch has had surgery in it to remove a growth of

any sort -and if there were any problems in keeping the pouch b/c of

that.

Thank you to anyone who is able to share.

-Meghan, mom to 14yo Wyatt -psc, ibd, genetic fap, gerd, autoimmune

hives, disabled (and wife to Russ -genetic fap/cancer, j-pouch)