Body Temperature/Fevers& Pain-Sandi &

[Guest guest]

Hi Girls,

I am a lurker and do not post often but for the last few months I have been in

constant pain (URQ). I also get on and off low grade fevers ranging from

37.5C-37.9C (99.5F-100.2F). My GI says that this is normal for PSC but does not

warrant antibiotics until it hits 38.5C (101.3F). I had an ERCP recently and

they did not see any strictures outside the liver--all my strictures are

intrahepatic. They also say that my liver is 'odd shaped'? I am assuming that

means large. No one can understand my pain and it is starting to get

frustrating. Both of you talk about pain a lot and I thought maybe you could

give me some suggestions or thoughts from your doctors. I am just getting super

frustrated.

Thanks a lot,

Shahina

PSC 2003/possible Crohn's 2007