Guest guest Posted August 21, 2004 Report Share Posted August 21, 2004 Thank you for this poem. I really needed it today. Several family members have turned against me because I cannot get well. They expect me to do for them like I try to do even while ill, but I am fighting pericarditis right now for the second time and simply can't. When I finally broke down and cried out of pain and depression that I had been holding in for months, one told me I was having a " pity party " and my own mother told me that I should " buck up " and that I don't have any problems. Sigh. I am now adding a tranquilizer to my nighttime bag of pills as I just don't care to think about it anymore. That is the hardest part for me. I gave them so much when I was well, and now, due to illness, I am worthless unless I can still do for them. Thanks for listening, fellow lupies. You can send me your bills for your psychiatric services. I can't PAY them.. but you can send them.. lol Sunny > LUPUS > What's it like to live with pain > Each and every day? > I eat right and take my meds > But it never goes away. > > Hipaches, headaches, heartaches, > Back and neck, hands and feet > Friends have a hard time accepting > As I'm always dressed so nice and neat. > > I used to be a " ball of fire " > Constantly on the go > They're tired of hearing my troubles now > Always a " tale of woe " . > > People say " but you look fine " > (They haven't walked in my shoes) > Stating " Cheer up and count your blessings " > When I'm depressed and " sing the blues " . > > No one knows what it's like > Til they've experienced a similar fate. > Will my lupus ever go into remission? > Guess all I can do is pray and wait. > > I'm tired of worrying > And of not feeling my best > I'm anxious over money > And want to have more zest. > > I, who took such good care of so many > Have no one to care for me, > But I believe life is meant to be > Love and joy and tranquility. > > I have a love and appreciation of life > Because adversity came my way > It made me a stronger person > And I cherish each and every day. > ....Carolyn Laskey > > Deanna > > LUPUS Serenity Prayer > Lord, grant me the serenity to accept the things I cannot > change, the courage to change the things I can, and the > wisdom to hide the bodies of doctors I shot when they said, > You're perfectly healthy, it's all in your head " > > LUPUS Support Group... > http://groups.yahoo.com/group/LUPIES > > LUPIES Store... > http://www.cafepress.com/thelupies > > LUPIES Web Page... > http://www.geocities.com/rion_trainer/lupusgroup.html Quote Link to comment Share on other sites More sharing options...
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