Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 Hi all, Well went and saw the rheumy today since my ummm enjoyable stay at the Ritz … LOL not, since my stay at the hospital. We went over all the notes from the hospital, labs, and other slew of tests. He however, does not agree with my pcp’s partner as to whether this incidence was the Sarcoidosis acting up - He feels that having the surgery put my lupus in an even higher flare than it has been. We have been trying to get my lupus flare under control with the Cellcept and Methotrexate but every time I would start the regimen something would come up to cause me to put it on hold. i.e. infection and then the surgery – so the medicine never had adequate time to get into my system. He also feels that it is the lupus that is causing my heart problems – as I have had heart issues from the lupus in the past. He wants me to go ahead and get back on the Cellcept and Methotrexate ASAP but I told him I was going to the dentist Monday and did not want to start it until after I had a filling done on that day. He said “ok”. So the game plan is Tuesday of next week go back on the meds, and then see him back in a month. Continue with the weekly lab work. Follow up with pcp tomorrow and get set up with a new cardiologist. He does agree with pcp to have me wear the lovely heart holter monitor for 24/48 hours. I told him “watch my pulse wont act up the entire time I am on it” he laughed and said “with your luck, probably not” But the good thing is that for the past several months I have been complaining of being dizzy, feeling lightheaded, etc. all signs of a low pulse rate. Also signs of low oxygen as well so it’s hard to pin point which one to contribute it to – but I will follow up with that tomorrow morning with pcp. So that’s the latest and greatest on the home front for now. Time for this tuckered one to go to sleep (well attempt to get some sleep) Hope everyone has a peaceful, restful, night. Hugs, Deanna LUPUS Serenity Prayer... Lord, grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to hide the bodies of doctors I shot when they said, You're perfectly healthy, it's all in your head " Quote Link to comment Share on other sites More sharing options...
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