Re: Conventional Vs. Integrative......just what I chose.

[Guest guest]

Marna - this is great news and I am happy for you and wesley. Our now 8 year old son Carson is being treated by the docs at TX Children's and although we are seeing some positive changes in our son's liver numbers, we have really had to take charge of the treatment and they don't like to give a lot of time to the importance of diet - they are still pushing the food pyramid!. Carson is on Urso, going off the Prednisone (finally) and been on the Oral Vanco for !out 3 months and we are seeing positive results with that. He too is on supplements - probiotics (he loves Kambucha) and DHA as well as calcium, etc. My wife Becky does a great job at feeding him healthy, mostly organic meals, etc. We do wonder if we can take off the Urso even though he is on a "low dose" compared to others.I wish you continued good news.Thanks,Sent from my Verizon Wireless BlackBerryFrom: "moranclan07" Date: Sun, 22 Mar 2009 09:51:08 -0000To: < >Subject: Conventional Vs. Integrative......just what I chose. OK,,,below is my son's liver disease reversing from stage 3 to barely stage 1-2 and no inflammation at all in some areas. Look at his bile acids 4 years ago,,,and LFT's ,,,,,and look at them without conventional medicine....I am blown away with joy,,,and I must PRAISE GOD for the guidance and mercy and strength to go with my gut and against conventional doctors orders. Below is a letter I just wrote to a conventional surgeon and his cardiologist wife that have become integrative medicine doctors. They wanted to help their patients before they got to the OR table is what they said ! Dear Doctor, I hope you remember us. Wesley had PSC/UC since the age of 1.....he was definatively diagnosed at age 3. He is now 14 years old. I have had to fight , yet needed conventional doctors,,,Gastroenterologists, hepatologists that refused to believe in probiotics or glutathione,,,,,they said give him a " Flintstone " , take high doses of Ursodiol and bring him back when he turns yellow " ! DIRECT QUOTE ! TEXAS CHILDREN'S of Houston! Enclosed MRCP, Liver Biopsy and Labs from April-June 2006 pre IV Glutathione and ALA done at TEXAS CHILDREN'S HOUSTON ( third stage PSC ) Enclosed March 2009 Labs, Endoscopy, Colonoscopy and Liver Biopsy. done at JOHNS HOPKINS CHILDREN'S BALTIMORE,MD ( barely stage 1-2 )and only in some areas. Wesley Moran lab changes with IV Glutathione and Alpha Lipoic Acid. Took him off Ursodiol due to research and prominent physicians telling me it was worthless. He has had an enlarged spleen for four years or more.... still has a 12cm spleen and inflammation going on in his colon....I think low dose naltrexone, " LDN " is going to help that ,,,it helps some crohns go into full remission I have to give him iron and get his hemoglobin up along with Vitamin C, colostrum. Transferrin. OK here is April 2006 VS March 2009 Total Bile Acids 30 Normal 0-10 Total Bile Acids 4.5 (JHopkins range normal ( 4.5-19.5) ( and they want to put him on 900mg of Urso! ) AST 604 Normal 10-60 AST 54 ALT 598 Normal 10-35 ALT 67 Alk Phos 755 Normal 135-530 Alk Phos 504 CA-19 was 19 Normal is 0-37 CA-19 13.7 ( This is a cancer antigen useful in monitoring liver, or colon ) AFP Tumor Marker Normal 0-10 Wesley was a 2.6 Now he is a 2.0 Summary: very confused conventional medicine doctors that do not believe in alpha lipoic acid, IV glutathione, Probiotics, LDN, etc. I WILL NOT GIVE WESLEY FLAGYL OR CIPRO. www.fluoroquinolones.org I have lasting body wide damage. Wesley had neurotoxic effects from 6 weeks of Flagyl at age three. Speech damage, balance and muscle coordination. I fell down and could barely walk for 4 months after taking it for a week. I am only one of hundreds of thousands world wide. Sadly I also belong to the fluoroquinolones yahoo support group. For all who want to discount this ,,,delete and go on,,,,each to his own,,,,but numbers don't lie....and Wesley's are WOW ! How did he back up from stage 3-barely 1-2 and no inflammation in most places, the pathologist would not even classify it as PSC,,,but his last 5 biopsies and ERCP's did !..... from two different top Texas and Pittsburgh Children's doctors. Just what works for Wesley and I Everyone make their own decision with their physicians advice to take or leave. MARNA , dealing with PSC/UC for 14 years ! I imagine you will kick me off here soon....I hope not....