RE: Update from Tom - TUESDAY, JANUARY 13, 2009 09:08 AM, CST

[Guest guest]

From a strictly selfish point of view, all the trouble Tom is having is scaring me to pieces. I'm third from the top of the list - one of the others is a big guy, and the other is a very small woman. So if the donor is medium sized, I'm up.Nita

[Guest guest]

Hi Nita

I am sure there have been many from this group who have had transplants

and have gone onto lead healthy lives with the PSC Yahoo Discussion

Board a distant memory.

Alas, its ones like Tom, Ken and Hillbilly Bob who are struggling that

we hear more of. Its great that we are able to hear what is happening

to them, because thats what a support group is all about.

Hopefully you will be one who has a transplant and just moves on from

there.

Best wishes .

[Guest guest]

Nita,

What Tom is experiencing is truly

challenging; however, his liver is working well. I am sure that Tom

is frustrated, but from the posts, he sounds like he is still in a positive

frame of mind. I think that he will fully recover and be as happy with

the final product as I am.

My transplant went well. I did have

a glitch at day six that made my stay in Chicago

last three weeks instead of one. Had I not had a reaction to one of the

meds to help me avoid a particularly bad strain of pneumonia, I would have been

home in one week. As it was, I was home in three and got to have a

weekend at home after week 2.

What I am trying to say is that after I

got home everything has went well. I am 15 months out and leading a very

normal life. Yes, I have to watch my sugar and salt intake, drink lots of

water, and exercise; however, all of that is really a plus as far as my health

is concerned. I raised a garden and took care of two yards totaling four

acres this past summer while working full time. I have had a cold since

transplant – only one. For the first time in my recent memory I was

able to shake it without antibiotics. No more infections, no more hurt in

the gut, no more URSO, no more sulfasalizine,

Do I sound excited. You bet! I

got another chance at life. I take every day that God gives me and live

it to the fullest.

Keep a positive attitude and good

luck. It sounds like it could happen at any time. You are in my

thoughts and prayers.

Joe

PSC & UC 1990; Liver Tx 2007

From a strictly selfish point of view, all the trouble Tom is having is

scaring me to pieces. I'm third from the top of the list - one of the others is

a big guy, and the other is a very small woman. So if the donor is medium

sized, I'm up.

Nita __

[Guest guest]

Joe and ...

Thanks for the encouraging words. I guess I'm freaking for no good reason.

Nita

[Guest guest]

Joe and ...

Thanks for the encouraging words. I guess I'm freaking for no good reason.

Nita