Guest guest Posted October 7, 2002 Report Share Posted October 7, 2002 Hi Everyone looking for TX help should look into COTA : http://www.cota.org/customsites/cota/index.asp " >Children's Organ transplant Association www.cota.org It says it is for Children but I know they help adults with CF.I know several who have gotten help setting up fundraisers and whatnot through them. A matter of fact this is what I will probably have to do to get my new honkers...hehe Becki YOUR FAVORITE LilGooberGirl YOUNGLUNG EMAIL SUPPORT LIST www.topica.com/lists/younglung Pediatric Interstitial Lung Disease Society http://groups.yahoo.com/group/InterstitialLung_Kids/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 Becky, I wanted to make you aware of a couple of things. 1. COTA is a great organization but there is a couple of drawbacks with them. The biggest one being. You do all the footwork, running around, raisigin money, in short, you work your ass off. The money goes into an account for you to access with you hae a bill and you submit, you get it reimbursed. The DRAWBACK: if something should happen to you, say if you do die. All the money you raised is then given to COTA and they disburse it to all their people vying for money. The problem, funerals cost a lot of money and your family would not be allowed to use that money for that purpose. Very unfair it seems. Find out more what happens. 2. NATF may be the choice for you. They will allow that money to be used for family costs in case something does happen. I am learnig a great deal about these groups as I am on the Board of Lungs for Life and I am on the review committee for the financial help. So I am being educated on how this all works. Just thought I would pass that along. joanne > > Hi Everyone looking for TX help should look into COTA : > http://www.cota.org/customsites/cota/index.asp " >Children's Organ transplant Association > www.cota.org > > It says it is for Children but I know they help adults with CF.I know > several > who have gotten help setting up fundraisers and whatnot through them. A > matter of fact this is what I will probably have to do to get my new > honkers...hehe > > Becki > YOUR FAVORITE LilGooberGirl > YOUNGLUNG EMAIL SUPPORT LIST > www.topica.com/lists/younglung > Pediatric Interstitial Lung Disease Society > http://groups.yahoo.com/group/InterstitialLung_Kids/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 Becky, I wanted to make you aware of a couple of things. 1. COTA is a great organization but there is a couple of drawbacks with them. The biggest one being. You do all the footwork, running around, raisigin money, in short, you work your ass off. The money goes into an account for you to access with you hae a bill and you submit, you get it reimbursed. The DRAWBACK: if something should happen to you, say if you do die. All the money you raised is then given to COTA and they disburse it to all their people vying for money. The problem, funerals cost a lot of money and your family would not be allowed to use that money for that purpose. Very unfair it seems. Find out more what happens. 2. NATF may be the choice for you. They will allow that money to be used for family costs in case something does happen. I am learnig a great deal about these groups as I am on the Board of Lungs for Life and I am on the review committee for the financial help. So I am being educated on how this all works. Just thought I would pass that along. joanne > > Hi Everyone looking for TX help should look into COTA : > http://www.cota.org/customsites/cota/index.asp " >Children's Organ transplant Association > www.cota.org > > It says it is for Children but I know they help adults with CF.I know > several > who have gotten help setting up fundraisers and whatnot through them. A > matter of fact this is what I will probably have to do to get my new > honkers...hehe > > Becki > YOUR FAVORITE LilGooberGirl > YOUNGLUNG EMAIL SUPPORT LIST > www.topica.com/lists/younglung > Pediatric Interstitial Lung Disease Society > http://groups.yahoo.com/group/InterstitialLung_Kids/ > > > Quote Link to comment Share on other sites More sharing options...
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