Guest guest Posted October 7, 2002 Report Share Posted October 7, 2002 Hello, I have a 7 year old boy with CF. He has been having severe abdominal pain coupled with dehydration, severe vomiting and fever. A GI specialist at a Children's hospital believes he is having intussusceptions. My child's pediatrician dosen't think so. My child has had about 7 attacks of this is the past 6 months. He ends up in hosptial with IV treatment for dehydration. His pediatrician doesn't know what is going on. Has anyone else experienced intussusceptions? My child is so scared of IV's, he kicks, screams, cries, bites and tells me he hates me. The same goes for bloodwork and needles. Should I consider a port or will this get better for my child? He has had about 50 admissions since birth...many IV's and it is just getting worse. Thanks for your time! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 Heidi, We were introduced to CF through my son having an intussusception. I did not realize you could have one and it not need to be treated immediately. The doctors were able to correct it with an air enema with no damage to the intestines. It would seem that if it were occuring with your son they would have to tend to it to avoid damage? The symptoms you describe are the same as my son's were. My pediatrican realize that there was a blockage as soon as they saw him and send us to the ER. Leigh, mom to three, youngest, , 2.5 yrs w/cf intussusceptions Hello, I have a 7 year old boy with CF. He has been having severe abdominal pain coupled with dehydration, severe vomiting and fever. A GI specialist at a Children's hospital believes he is having intussusceptions. My child's pediatrician dosen't think so. My child has had about 7 attacks of this is the past 6 months. He ends up in hosptial with IV treatment for dehydration. His pediatrician doesn't know what is going on. Has anyone else experienced intussusceptions? My child is so scared of IV's, he kicks, screams, cries, bites and tells me he hates me. The same goes for bloodwork and needles. Should I consider a port or will this get better for my child? He has had about 50 admissions since birth...many IV's and it is just getting worse. Thanks for your time! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 Heidi, We were introduced to CF through my son having an intussusception. I did not realize you could have one and it not need to be treated immediately. The doctors were able to correct it with an air enema with no damage to the intestines. It would seem that if it were occuring with your son they would have to tend to it to avoid damage? The symptoms you describe are the same as my son's were. My pediatrican realize that there was a blockage as soon as they saw him and send us to the ER. Leigh, mom to three, youngest, , 2.5 yrs w/cf intussusceptions Hello, I have a 7 year old boy with CF. He has been having severe abdominal pain coupled with dehydration, severe vomiting and fever. A GI specialist at a Children's hospital believes he is having intussusceptions. My child's pediatrician dosen't think so. My child has had about 7 attacks of this is the past 6 months. He ends up in hosptial with IV treatment for dehydration. His pediatrician doesn't know what is going on. Has anyone else experienced intussusceptions? My child is so scared of IV's, he kicks, screams, cries, bites and tells me he hates me. The same goes for bloodwork and needles. Should I consider a port or will this get better for my child? He has had about 50 admissions since birth...many IV's and it is just getting worse. Thanks for your time! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 Heidi, We were introduced to CF through my son having an intussusception. I did not realize you could have one and it not need to be treated immediately. The doctors were able to correct it with an air enema with no damage to the intestines. It would seem that if it were occuring with your son they would have to tend to it to avoid damage? The symptoms you describe are the same as my son's were. My pediatrican realize that there was a blockage as soon as they saw him and send us to the ER. Leigh, mom to three, youngest, , 2.5 yrs w/cf intussusceptions Hello, I have a 7 year old boy with CF. He has been having severe abdominal pain coupled with dehydration, severe vomiting and fever. A GI specialist at a Children's hospital believes he is having intussusceptions. My child's pediatrician dosen't think so. My child has had about 7 attacks of this is the past 6 months. He ends up in hosptial with IV treatment for dehydration. His pediatrician doesn't know what is going on. Has anyone else experienced intussusceptions? My child is so scared of IV's, he kicks, screams, cries, bites and tells me he hates me. The same goes for bloodwork and needles. Should I consider a port or will this get better for my child? He has had about 50 admissions since birth...many IV's and it is just getting worse. Thanks for your time! Quote Link to comment Share on other sites More sharing options...
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