Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Listmates: My 4-yr old son has been on an SCD & GFCFSF diet for over a year. He essentially has some combination of organic chicken/meat, vegetables, fruits & honey every day. He's doing great health-wise (gained 5 pounds in last year, now above 50%ile in height & weight), stools essentially normal with minor variations based on chelation & minerals, and no longer diagnosed as being on the spectrum. We just did a scope over the holiday break to look for inflammation in the ileum (as Dr. Wakefield found in so many ASD kids), and generally check the status of the GI tracts. We got the results back today that his gut looks perfectly healthy. No inflammation, although the GI (Dr. Hart, who just did a measles & autistic enterocolitis study with Dr. Mumper & Dr. Wakefield) said there's evidence of past minor inflammation (evidence of leaky gut and/or viral infection) that has now fully healed. All enzymes, biopsies, etc., were normal. I am now considering going off SCD first, and then possibly off GFCFSF as well, but I'm definitely scared to even consider it. I recall that Elaine has said in her book that many people's guts heal within 1-3 yrs and that they CAN go back to regular foods at some point. Has anyone done this successfully (or know of ASD kids who have done this successfully)? Mind you, I would likely stay 80- 90% scd/gfcfsf regardless, just because I think it's really healthy. But it would be nice to have a little bit of flexibility and not feel like I have to be paranoid about every single bite! On the other hand, he doesn't enter kindergarten for another 1.7 years, so it would be relatively easy to keep him on SCD for another year or two. Thanks for any thoughts you might have. As you can probably tell, I'm torn and confused and scared. I'm so happy about the results of the scope, but unsure as to what to do (especially since our primary DAN doctor consult is not for a few months). Thanks again, Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Angie, It sounds like your mind is telling you that you could possibly go off SCD, but your intuition is telling you that it might not be the thing to do just yet. I would go with your intuition. I know that Elaine kept her daughter on the diet a full 7 years after she had healed all her symptoms, so it can't hurt. If and when you do decide to try some non-SCD foods, I would make it the healthiest ones that you can, like maybe an organic yam, for instance. Congratulations on fully recovering your son - that's quite a testament to your devotion to doing what's right for your child. Hope this helps, Marilyn leaky gut, low thyroid/adrenal, SCD 3 months When to " graduate " from SCD? > Listmates: My 4-yr old son has been on an SCD & GFCFSF diet for over > a year. He essentially has some combination of organic chicken/meat, > vegetables, fruits & honey every day. He's doing great health-wise > (gained 5 pounds in last year, now above 50%ile in height & weight), > stools essentially normal with minor variations based on chelation & > minerals, and no longer diagnosed as being on the spectrum. We just > did a scope over the holiday break to look for inflammation in the > ileum (as Dr. Wakefield found in so many ASD kids), and generally > check the status of the GI tracts. > > We got the results back today that his gut looks perfectly healthy. > No inflammation, although the GI (Dr. Hart, who just did a measles & > autistic enterocolitis study with Dr. Mumper & Dr. Wakefield) said > there's evidence of past minor inflammation (evidence of leaky gut > and/or viral infection) that has now fully healed. All enzymes, > biopsies, etc., were normal. I am now considering going off SCD > first, and then possibly off GFCFSF as well, but I'm definitely > scared to even consider it. > > I recall that Elaine has said in her book that many people's guts > heal within 1-3 yrs and that they CAN go back to regular foods at > some point. Has anyone done this successfully (or know of ASD kids > who have done this successfully)? Mind you, I would likely stay 80- > 90% scd/gfcfsf regardless, just because I think it's really healthy. > But it would be nice to have a little bit of flexibility and not feel > like I have to be paranoid about every single bite! On the other > hand, he doesn't enter kindergarten for another 1.7 years, so it > would be relatively easy to keep him on SCD for another year or two. > > Thanks for any thoughts you might have. As you can probably tell, > I'm torn and confused and scared. I'm so happy about the results of > the scope, but unsure as to what to do (especially since our primary > DAN doctor consult is not for a few months). > > Thanks again, > Angie > > > > > > For information on the Specific Carbohydrate Diet, please read the book > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Angie, It sounds like your mind is telling you that you could possibly go off SCD, but your intuition is telling you that it might not be the thing to do just yet. I would go with your intuition. I know that Elaine kept her daughter on the diet a full 7 years after she had healed all her symptoms, so it can't hurt. If and when you do decide to try some non-SCD foods, I would make it the healthiest ones that you can, like maybe an organic yam, for instance. Congratulations on fully recovering your son - that's quite a testament to your devotion to doing what's right for your child. Hope this helps, Marilyn leaky gut, low thyroid/adrenal, SCD 3 months When to " graduate " from SCD? > Listmates: My 4-yr old son has been on an SCD & GFCFSF diet for over > a year. He essentially has some combination of organic chicken/meat, > vegetables, fruits & honey every day. He's doing great health-wise > (gained 5 pounds in last year, now above 50%ile in height & weight), > stools essentially normal with minor variations based on chelation & > minerals, and no longer diagnosed as being on the spectrum. We just > did a scope over the holiday break to look for inflammation in the > ileum (as Dr. Wakefield found in so many ASD kids), and generally > check the status of the GI tracts. > > We got the results back today that his gut looks perfectly healthy. > No inflammation, although the GI (Dr. Hart, who just did a measles & > autistic enterocolitis study with Dr. Mumper & Dr. Wakefield) said > there's evidence of past minor inflammation (evidence of leaky gut > and/or viral infection) that has now fully healed. All enzymes, > biopsies, etc., were normal. I am now considering going off SCD > first, and then possibly off GFCFSF as well, but I'm definitely > scared to even consider it. > > I recall that Elaine has said in her book that many people's guts > heal within 1-3 yrs and that they CAN go back to regular foods at > some point. Has anyone done this successfully (or know of ASD kids > who have done this successfully)? Mind you, I would likely stay 80- > 90% scd/gfcfsf regardless, just because I think it's really healthy. > But it would be nice to have a little bit of flexibility and not feel > like I have to be paranoid about every single bite! On the other > hand, he doesn't enter kindergarten for another 1.7 years, so it > would be relatively easy to keep him on SCD for another year or two. > > Thanks for any thoughts you might have. As you can probably tell, > I'm torn and confused and scared. I'm so happy about the results of > the scope, but unsure as to what to do (especially since our primary > DAN doctor consult is not for a few months). > > Thanks again, > Angie > > > > > > For information on the Specific Carbohydrate Diet, please read the book > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Angie, It sounds like your mind is telling you that you could possibly go off SCD, but your intuition is telling you that it might not be the thing to do just yet. I would go with your intuition. I know that Elaine kept her daughter on the diet a full 7 years after she had healed all her symptoms, so it can't hurt. If and when you do decide to try some non-SCD foods, I would make it the healthiest ones that you can, like maybe an organic yam, for instance. Congratulations on fully recovering your son - that's quite a testament to your devotion to doing what's right for your child. Hope this helps, Marilyn leaky gut, low thyroid/adrenal, SCD 3 months When to " graduate " from SCD? > Listmates: My 4-yr old son has been on an SCD & GFCFSF diet for over > a year. He essentially has some combination of organic chicken/meat, > vegetables, fruits & honey every day. He's doing great health-wise > (gained 5 pounds in last year, now above 50%ile in height & weight), > stools essentially normal with minor variations based on chelation & > minerals, and no longer diagnosed as being on the spectrum. We just > did a scope over the holiday break to look for inflammation in the > ileum (as Dr. Wakefield found in so many ASD kids), and generally > check the status of the GI tracts. > > We got the results back today that his gut looks perfectly healthy. > No inflammation, although the GI (Dr. Hart, who just did a measles & > autistic enterocolitis study with Dr. Mumper & Dr. Wakefield) said > there's evidence of past minor inflammation (evidence of leaky gut > and/or viral infection) that has now fully healed. All enzymes, > biopsies, etc., were normal. I am now considering going off SCD > first, and then possibly off GFCFSF as well, but I'm definitely > scared to even consider it. > > I recall that Elaine has said in her book that many people's guts > heal within 1-3 yrs and that they CAN go back to regular foods at > some point. Has anyone done this successfully (or know of ASD kids > who have done this successfully)? Mind you, I would likely stay 80- > 90% scd/gfcfsf regardless, just because I think it's really healthy. > But it would be nice to have a little bit of flexibility and not feel > like I have to be paranoid about every single bite! On the other > hand, he doesn't enter kindergarten for another 1.7 years, so it > would be relatively easy to keep him on SCD for another year or two. > > Thanks for any thoughts you might have. As you can probably tell, > I'm torn and confused and scared. I'm so happy about the results of > the scope, but unsure as to what to do (especially since our primary > DAN doctor consult is not for a few months). > > Thanks again, > Angie > > > > > > For information on the Specific Carbohydrate Diet, please read the book > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 The suggested waiting time for taking back foods is one year after the last symptom has vanished. Carol F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 The suggested waiting time for taking back foods is one year after the last symptom has vanished. Carol F. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.