RE :CF Awareness Week/ Becki...

[Guest guest]

Wow!! That is great! Leigh Staelin

RE :CF Awareness Week/ Becki...

Here is a copy of the what they want to do...sounds good..

Becki,

I'm thinking a good angle to the story would be that CF patients are

living longer than ever but there's still so much they go through. Maybe

talk

with your friend about meds, treatments that sort of thing. I'd also like

to

talk with your friend who moved here for the transplant. I know that's

another issue that's common as people live longer with the disease. What

would be great is if we could catch up with them at home and see what life

is

like. I definitely want to get this on the air by next Thursday so if you

want to see when works for them we can go from there.

THanks,

Moody

Becki

YOUR FAVORITE LilGooberGirl

YOUNGLUNG EMAIL SUPPORT LIST

www.topica.com/lists/younglung

Pediatric Interstitial Lung Disease Society

http://groups.yahoo.com/group/InterstitialLung_Kids/

[Guest guest]

Wow!! That is great! Leigh Staelin

RE :CF Awareness Week/ Becki...

Here is a copy of the what they want to do...sounds good..

Becki,

I'm thinking a good angle to the story would be that CF patients are

living longer than ever but there's still so much they go through. Maybe

talk

with your friend about meds, treatments that sort of thing. I'd also like

to

talk with your friend who moved here for the transplant. I know that's

another issue that's common as people live longer with the disease. What

would be great is if we could catch up with them at home and see what life

is

like. I definitely want to get this on the air by next Thursday so if you

want to see when works for them we can go from there.

THanks,

Moody

Becki

YOUR FAVORITE LilGooberGirl

YOUNGLUNG EMAIL SUPPORT LIST

www.topica.com/lists/younglung

Pediatric Interstitial Lung Disease Society

http://groups.yahoo.com/group/InterstitialLung_Kids/

[Guest guest]

Wow!! That is great! Leigh Staelin

RE :CF Awareness Week/ Becki...

Here is a copy of the what they want to do...sounds good..

Becki,

I'm thinking a good angle to the story would be that CF patients are

living longer than ever but there's still so much they go through. Maybe

talk

with your friend about meds, treatments that sort of thing. I'd also like

to

talk with your friend who moved here for the transplant. I know that's

another issue that's common as people live longer with the disease. What

would be great is if we could catch up with them at home and see what life

is

like. I definitely want to get this on the air by next Thursday so if you

want to see when works for them we can go from there.

THanks,

Moody

Becki

YOUR FAVORITE LilGooberGirl

YOUNGLUNG EMAIL SUPPORT LIST

www.topica.com/lists/younglung

Pediatric Interstitial Lung Disease Society

http://groups.yahoo.com/group/InterstitialLung_Kids/

[Guest guest]

Sounds GREAT, Becki, also SPREADING THE WORD ABOUT TRANSPLANT AND THE

NEED FOR DONORS!!!!!

Lenora

>Here is a copy of the what they want to do...sounds good..

>

>Becki,

> I'm thinking a good angle to the story would be that CF patients are

>living longer than ever but there's still so much they go through. Maybe talk

>with your friend about meds, treatments that sort of thing. I'd also like to

>talk with your friend who moved here for the transplant. I know that's

>another issue that's common as people live longer with the disease. What

>would be great is if we could catch up with them at home and see what life is

>like. I definitely want to get this on the air by next Thursday so if you

>want to see when works for them we can go from there.

> THanks,

> Moody

>

>

>Becki

>YOUR FAVORITE LilGooberGirl

>YOUNGLUNG EMAIL SUPPORT LIST

>www.topica.com/lists/younglung

>Pediatric Interstitial Lung Disease Society

>http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

>