Status IV & IGE's and anything else with letter I

[Guest guest]

Hi! Today they removed 's IV - yes! I think I am happier than she is.

She is still coughing more than her norm. Now she will do zithomax 500 mg.

3 times a week. She has been out of school for 2 weeks. She was so tired

and coughing so much - to the point she vomited into her dinner plate!

I think she is depressed. I know I am . I feel like I do everything " right "

and she still gets sick! 's IGE # is up to 1600 again.........I have to

take him for xray and PFT's this week.

My husband is still a piece of ____. At least something is consistent.

I was never a worrier now I feel like I am worrying.....

It this typical with the first home IV.......that feeling of dread......what

if....is this the beginning of frequent IV's, etc.....

Take care and thank you for listening..........

Rosemary in New York with 3 children with CF - they are 12, 9.8, 5.9...I

coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you

ready for this -

TOBI after their medication!

[Guest guest]

Rosemary,

Here's a big cyber hug! Hang in there! She'll start feeling better ASAP!

You'll see, zithromax is an awesome discovery and drug!

Cheryl

[Guest guest]

Rosemary,

Here's a big cyber hug! Hang in there! She'll start feeling better ASAP!

You'll see, zithromax is an awesome discovery and drug!

Cheryl