Re: cfparents- is in the hospital--Question

[Guest guest]

Ports are a relief after a lot of blown IV's had a port when he was 15

months he was the first cf infant to have a port.I called it his good luck

charm as he kept it til he was 5 and he stayed out of the hospital the whole

time he had it.With Rebekah she was so very ill she didn't have any surface

veins left only deep veins (cut down kind .Her first port had a line failure

less than a year later.I wanted to see if she did ok without it.She did have

a hard time so we put another in almost 2 years ago and she has been out of

the hospital 2 years this monthWOW that is a record for her ! I hope Eilish &

Liam are doing good.BeckyB.

[Guest guest]

Ports are a relief after a lot of blown IV's had a port when he was 15

months he was the first cf infant to have a port.I called it his good luck

charm as he kept it til he was 5 and he stayed out of the hospital the whole

time he had it.With Rebekah she was so very ill she didn't have any surface

veins left only deep veins (cut down kind .Her first port had a line failure

less than a year later.I wanted to see if she did ok without it.She did have

a hard time so we put another in almost 2 years ago and she has been out of

the hospital 2 years this monthWOW that is a record for her ! I hope Eilish &

Liam are doing good.BeckyB.

[Guest guest]

What you mentioned about the TB sounds familiar. Last year about this time

was in the hospital and another of our cf friends was also there.

That girl had " TB " signs but it wasn't like the TB I knew of. The doctors

figured it came from the water. They had her in isolation for the week she

was there. They were giving her an antibiotic and then had to give benadryl

because of the reddness and itching from the antibiotic. She was on

vancomycin. The doctors told us that everyone is exposed to this type of

" TB " but only some people have problems from it.

Hope this helps.

Sue Pettit

mom to (15 wocf), (12 wocf), and (10 wcf) diagnosed at

8 days of age at LeBonheur Childrens Medical Center in Memphis, Tennessee

[Guest guest]

Hope gets well soon. Never heard of anything but the run of the

mill PA. I can understand his reluctance to a port, I absolutely hate

them and dread Eilish having one (phobia of mine). Best of luck.

(Australia)

Liam 8 wocf & Eilish 5wcf

cfparents- is in the hospital--Question

Hi all .My 18 year old is in club med.He has a weird psuedamona it seems

it

comes up TB but it isn't TB the psuedo is so close it comes up on the

culture

TB very scary he hates it as they put him in isolation .Have any of you

heard

of the psuedo (tb pretender) ?The weather here has been very humid the

last

week and Forgets he has asthma.I talked to him about a port again

,as

an adult it is his decision and with his times in the hospital 5 this

spring(we will not discuss those) he really is running out of veins for

those

picc lines.BeckyB.

[Guest guest]

Hi Becky,

go to the link below (since it is too large you have to copy and

paste it into the adress line), there is good information about

Pseudomonas aeruginosa TB. I hadn't heard of this strain before

either. But whenever you look for information about something, just

go to www.google.com and type the keywords you are looking for. I did

a search for Pseudomonas and TB and found quite a lot of info.

Hope will get well soon. Is he on Zithromax already?

Peace

Torsten, dad of Fiona 5wcf

http://www.mh-

hannover.de/kliniken/kinderheilkunde/kfg/pseudo/pseudo_pa.htm

> Ports are a relief after a lot of blown IV's had a port when

he was 15

> months he was the first cf infant to have a port.I called it his

good luck

> charm as he kept it til he was 5 and he stayed out of the hospital

the whole

> time he had it.With Rebekah she was so very ill she didn't have any

surface

> veins left only deep veins (cut down kind .Her first port had a

line failure

> less than a year later.I wanted to see if she did ok without it.She

did have

> a hard time so we put another in almost 2 years ago and she has

been out of

> the hospital 2 years this monthWOW that is a record for her ! I

hope Eilish &

> Liam are doing good.BeckyB.

>

>

>