Guest guest Posted October 14, 2002 Report Share Posted October 14, 2002 Hi Mom, welcome to the list! Let me say at first how devastated I am about the explosion in Bali. I've never been there, but spent a vacation this year on Mallorca and that is the same for Germans as is Bali for Aussies. One can't imagine that terrorists chose such a party-island for their attack. CF treatment in Germany sounds comparable to that in Australia. Everything is for free but we are five years behind when it comes to new medical breakthroughs. Fiona's last doc, Dr. Zeidler, worked in the Melbourne CF center for one year, maybe you know her. Peace Torsten, dad of Fiona 5wcf > Thank you for welcome to your group. I am mother of 24 yr old son, with > cf, in Melbourne, Australia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2002 Report Share Posted October 14, 2002 Hi Mom, welcome to the list! Let me say at first how devastated I am about the explosion in Bali. I've never been there, but spent a vacation this year on Mallorca and that is the same for Germans as is Bali for Aussies. One can't imagine that terrorists chose such a party-island for their attack. CF treatment in Germany sounds comparable to that in Australia. Everything is for free but we are five years behind when it comes to new medical breakthroughs. Fiona's last doc, Dr. Zeidler, worked in the Melbourne CF center for one year, maybe you know her. Peace Torsten, dad of Fiona 5wcf > Thank you for welcome to your group. I am mother of 24 yr old son, with > cf, in Melbourne, Australia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2002 Report Share Posted October 14, 2002 Hi Mom, welcome to the list! Let me say at first how devastated I am about the explosion in Bali. I've never been there, but spent a vacation this year on Mallorca and that is the same for Germans as is Bali for Aussies. One can't imagine that terrorists chose such a party-island for their attack. CF treatment in Germany sounds comparable to that in Australia. Everything is for free but we are five years behind when it comes to new medical breakthroughs. Fiona's last doc, Dr. Zeidler, worked in the Melbourne CF center for one year, maybe you know her. Peace Torsten, dad of Fiona 5wcf > Thank you for welcome to your group. I am mother of 24 yr old son, with > cf, in Melbourne, Australia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2002 Report Share Posted October 14, 2002 Thank you for welcome to your group. I am mother of 24 yr old son, with cf, in Melbourne, Australia. He has just come out of hospital after a " tune-up " (2 weeks) and is feeling better. He is very beautiful, strong, and wise and dearly loved. We are so lucky in Australia that treatment is free of charge and prescriptions, even Pulmyzone, cost about $4. However if he could work he would lose this benefit, and if he married and his wife was employed, he would lose medicine concessions.. I think Pulmyzone cost about $1000 per week.(Our Govt. picks up this cost) How is treatment in other countries? ***** Forwarded Message Follows ******* >To: leonards@... >From: cfparents Moderator cfparents-owner > >Date: 3 Oct 2002 15:55:26 -0000 > > >Hello, > >Welcome to the cfparents list. Thank you for subscribing and I hope that you >find the support and information here that you've been seeking. >I am the mother of three wonderful children, ages 9, 7, and 4. The four year >old has cystic fibrosis. As the parent of a child with this diagnosis, I know >that life can be a roller coaster ride at times, and it's good to know that >there are others who share your fears, concerns, experiences, and hopes. >The email address to send list messages to is >cfparents >Feel free to post an introduction for us to get to know you, and any >questions/concerns you may have. You are not alone! > > >E-mail me at ma8169@... with any suggestions. > >This list is designed to be inclusive in nature. >Please do not post anything overtly religious in nature, >as we have subscribers of all faiths (and lack thereof) on this list. > > >Post message: cfparents >Subscribe: cfparents-subscribe >Unsubscribe: cfparents-unsubscribe >List owner: cfparents-owner > >Please note that responding to this email will send >a message directly to me (the list owner.) >If you wish to post to the list, please use the address: > >cfparents > >Thanks, > Albright >(The List Owner) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2002 Report Share Posted October 14, 2002 Torsten, Isn't the UK ahead of everyone when it comes to genetic research? Reeves (Superman) was on the " Larry King Live " show. He said that the UK is doing stem cell research. He said that the USA gets wrapped up in political issues and it slows our progress. I was hoping that our children would benefit from the research that may be going on in the UK. Thanks, Gale > > Thank you for welcome to your group. I am mother of 24 yr old son, > with > > cf, in Melbourne, Australia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 on 14/10/02 8:30 PM, rleonard at leonards@... wrote: > Thank you for welcome to your group. And another gidday from Canberra! Where abouts in Melbourne are you folks? When I visit in Dec/Jan, I'll be hanging in the Preston/Northcote/Brunswick kind of area..... Mum to Cate 10yrs wocf and Sian 6yrs wcf, asthma, GERD and ADD? Canberra Australia Quote Link to comment Share on other sites More sharing options...
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