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Re: Cyndie re: sandostatin

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Cyndie,

My doc has me use Sandostatin only at the onset of an acute attack. I

don't use it as a daily medicine. My trepidation over the drug is the bad

reaction I get for the first 15-20 minutes after I inject myself. I

usually go into cold sweats and vomit for distance for about 5 minutes. I

keep some Phenergan suppositories around and try to remember to take them

20 minutes before I inject but even that isn't enough sometimes. I'm OK

after that and the drug stops nearly all of my attacks within 24-48

hours. It kicks my butt but it stops the attack in its tracks.

That's my story about Sandostatin. I love it and I hate it. What it does

FOR me I love. What it does TO me I hate.

Chuck

At 05:39 AM 8/26/2002 +0000, you wrote:

>What's all the commotion about Sandostatin??? I've been on it

>since '97. I take 50mics 3x a day.

>Isn't it safe? Are there long term side=effects to it?

>Cyndie :-)

Chuck Sullivan

chuck@...

" When in command, Take charge. When faced with a decision, do what is

right. Nothing else matters. " - Gen. Norman Schwarzkopf

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